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  1. Verona Pharma drug called RPL554, maybe effective at treating CF

    by , Today at 01:01 PM (Chris Baldwin's Cystic Fibrosis Blog)
    A drug currently in phase 2 clinical trials for COPD and Asthma maybe effective for the treatment of Cystic Fibrosis. Verona Pharma is expected to present some data at the upcoming NACFC on their drug called RPL554, which they claim will help "activate" the CFTR protein. CFTR activation may also contribute to the efficacy of inhaled RPL554 already observed in COPD and asthma. There is no data yet on what exactly is meant by "Activation" and if this would result in any significant ...
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  3. Mucoid vs Non-mucoid Pseudomonas aeruginosa (PA) and how this relates to Biofilms

    by , Yesterday at 01:50 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Someone asked me to explain the difference between mucoid and non-mucoid Pseudomonas aeruginosa (PA) and how this relates to Biofilms. The answer is quite simple really. Most people with CF become infected with the non-mucoid PA strain in their childhood or adolescent years (80% are infected by the time they reach 20 years old). This non-mucoid PA strain over time tends to mutate to a mucoid strain, which means it now has the ability to produce a protective biofilm that can protect it from its environment. ...
  4. The Lung Ranger - detect and quantify bacteria in mucous in real-time

    by , 09-28-2014 at 03:47 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Students at Dundee University are developing a device to help rapid detection and quantification (via green fluorescence) of sputum bacteria such as Pseudomonas aeruginosa or Burkholderia cenocepacia. During a competition (iGEM), they came up with the idea of the "Lung Ranger", made up of the harmless laboratory bacterium E. coli that have been engineered to glow green when other select bacteria are present.

    They are building a hand-held electronic device that can be used ...
    CF Treatment
  5. Cystic Fibrosis News - Week 39

    by , 09-28-2014 at 02:13 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Hi all, here is a list of items I came across this week in the media on CF. I covered some of this in more detail in this weeks Newsletter which you either will received in your inbox or can access via our facebook page:

    A lot of these news items link to our facebook. That is because I have made an interpretation of the news, to save you time of not having to read the entire news source. All news sources are however linked via the Facebook page.

    Updated 09-28-2014 at 03:36 PM by ChrisBaldwin

    CF Weekly News Updates
  6. Anyone else HATE dealing with insurance?

    If you take Zenpep you can get FREE Boost delivered right to your door! You would simply sign up at You can also get your co-pays reimbursed through them. They do occasionally run out of Boost Plus in Chocolate (which is my son's favorite), but they have several other options to choose from. Right now my son is getting Clif's Z-Bars. OH, they also send free Vitamin D & AquaADEK vitamins. It's a really great program, and is not dependent on income!

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