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  1. Sasha's Smile

    Hello All!

    My name is Merisa and I am the mother of a beautiful, 1 year old baby girl named Sasha. She was diagnosed with cystic fibrosis at just 1 month of age. I recently started a blog about motherhood, life, love, and our fight against cystic fibrosis alongside our baby girl. I hope other parents will be able to read my posts and relate to all the emotions and struggles involved with raising a baby facing a challenging disease. Please feel free to read my blog at the link below. ...
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  2. Join Now!!!
  3. Positive

    Hi everyone! My name is Meghan, 24 years old, and I have a blog on CF and positivity. I started this before I started PT school last summer, and I'd love to share with you. Hope some of the articles brighten up your day and are relative to whats going on in your life. Happy Health Holidays!!
    Breathing&Beating,
    Meghan

    http://65rosespositive.blogspot.com....ys-enough.html
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  4. Canadian adults with CF living longer

    by , 12-16-2014 at 01:09 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Quote Originally Posted by ladybird View Post
    http://www.medicalnewstoday.com/releases/285437.php

    Canadians with cystic fibrosis are living almost 20 years longer than they did two decades ago.
    The median survival age was 49.7 years in 2012, up from 31.9 years in 1990, Dr. Anne Stephenson, a respirologist and research at St. Michael's Hospital wrote in the European Respiratory Journal. Since the paper was written, Dr. Stephenson has updated the median survival age to include Cystic Fibrosis Canada data from 2013 and reported
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  5. Flu type A Day 2

    Well she woke up Sunday with a fever 103.5 so we went to the ER. She has the flu and she was already getting ill with low grade fevers and a cough and her CF appointment was going to be today... She had a PORT placed yesterday. She keeps having severe fevers and is exhausted. Will most likely be here for Christmas
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  6. GI advice

    Quote Originally Posted by Ratatosk View Post
    DS had surgery when he was 6 for an obstruction and he pretty much had issues a year or so prior to that with vomiting undigested food HOURS after eating, sudden sharp pain then he'd vomit. That usually occurred if he ate more than usual. But there was no rhyme or reason, it was sporadic -- we thought it was him being picky, taking his Zithromax around dinner so we switched to bedtime. We were able to maintain 50th percentile because we pushed carnation instant breakfast made with cream and whole
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