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  1. Cystic Fibrosis News - Week 35

    by , 08-30-2014 at 03:25 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Cystic Fibrosis News - Week 35:


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  3. Participatory Healthcare - A needed innovation for treating Cystic Fibrosis

    by , 08-30-2014 at 12:45 AM (Chris Baldwin's Cystic Fibrosis Blog)
    A fantastic TED talk on "Participatory Healthcare" and what it can mean for the patient. Professor Bas Bloem has done some amazing things in the Netherlands on Parkinson's and his participatory healthcare model would be so valuable for the CF community! I will be speaking with Professor Bas Bloem in the near future and talking to him about what he has built with parkinsonnet.nl and see how we can apply this to CF for the benefit of all living, caring, treating and paying for CF! ...
  4. New Innovation allows for live tracking of CF treatments

    by , 08-28-2014 at 02:33 PM (Chris Baldwin's Cystic Fibrosis Blog)
    A BREAKTHROUGH innovation just hit the market, which allows for the first time, to measure CF treatments in the lungs in "real-time". The new technique allows for doctors and researchers to measure how effective treatments are "very quickly", meaning they can adopt new treatments in clinical settings much faster then previously possible.

    The new technique allows doctors to see soft tissue as they would using an x-ray machine to view hard tissue like bones. Current ...
    Categories
    CF Treatment
  5. Airway Surface Liquid or ASL could be key to treating CF

    by , 08-27-2014 at 05:39 PM (Chris Baldwin's Cystic Fibrosis Blog)
    A SIGNIFICANT BREAKTHROUGH has occurred from scientist studying pigs tracheas that have been modified to mimic CF lungs. They discovered that CF lungs do not produce a very important and almost undetectable thin layer of fluid that lines the lungs, called "airway surface liquid" (ASL for short). This liquid and gelatin substance is thought to trap inhaled particles and bacteria, and kill micro-organisms before little hairs called cilia sweep the mucus out of the lungs.

    Now ...

    Updated Yesterday at 11:12 PM by ChrisBaldwin

    Categories
    CF - The Disease , CF Treatment
  6. The promise of drug combination therapy for CF

    by , 08-26-2014 at 02:34 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Click image for larger version. 

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ID:	446A quick (easy to read) blurb on the recent drug combination therapies involving Kalydeco: The Kalydeco drug that effectively restores the flow of water and chloride through the CFTR protein channel has been successfully used to treat people with CF who carry the "celtic gene" (G551D), which is found in about 4% of CFers worldwide and 10-15% in Ireland (hence called the "celtic gene").

    Recent combination trials in 1100 patients ...
    Categories
    CF Treatment
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