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  1. Canadian adults with CF living longer

    by , 12-16-2014 at 02:09 PM (Chris Baldwin's Cystic Fibrosis Blog)
    Quote Originally Posted by ladybird View Post
    http://www.medicalnewstoday.com/releases/285437.php

    Canadians with cystic fibrosis are living almost 20 years longer than they did two decades ago.
    The median survival age was 49.7 years in 2012, up from 31.9 years in 1990, Dr. Anne Stephenson, a respirologist and research at St. Michael's Hospital wrote in the European Respiratory Journal. Since the paper was written, Dr. Stephenson has updated the median survival age to include Cystic Fibrosis Canada data from 2013 and reported
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  3. Flu type A Day 2

    Well she woke up Sunday with a fever 103.5 so we went to the ER. She has the flu and she was already getting ill with low grade fevers and a cough and her CF appointment was going to be today... She had a PORT placed yesterday. She keeps having severe fevers and is exhausted. Will most likely be here for Christmas
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  4. GI advice

    Quote Originally Posted by Ratatosk View Post
    DS had surgery when he was 6 for an obstruction and he pretty much had issues a year or so prior to that with vomiting undigested food HOURS after eating, sudden sharp pain then he'd vomit. That usually occurred if he ate more than usual. But there was no rhyme or reason, it was sporadic -- we thought it was him being picky, taking his Zithromax around dinner so we switched to bedtime. We were able to maintain 50th percentile because we pushed carnation instant breakfast made with cream and whole
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  5. GI advice

    Quote Originally Posted by Ratatosk View Post
    Ugh, we dealt with this for the first 5 years with ds. We'd clean him out, he'd be fine. Then his eating would decrease, stomach would be distended, sometimes he'd vomit... Vicious cycle. We found with him though because his eating REALLY decreased -- a chicken nugget would make him full --- and he'd vomit if he ate more that his was caused by adhesions from his original surgery narrowing a portion of his intestine so his enzymes weren't getting where they were supposed to get to. So his issues
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  6. Glad to be on the mend

    On or about 11/07 I got horribly sick.
    I was vomiting non-stop; feeling nauseated & just feeling awful. I couldn't even get out of bed to go vomit.
    Sometime during the night, I aspirated vomit into my lungs.
    The next day, Becky demanded I get in the truck & go to the hospital in PHX.
    I spent 2 full weeks in the ICU followed by one week on the CF floor. I was intubated for over a week & a half.
    You want to talk about some wild hallucinations!
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