Recent content by greenjune

Rebjane, I wonder what the advantage of giving salt to a newborn is? What are the consequences if we don't do it? The CF clinic did teach us how to do the CPT although, embarrassingly, my husband and I were crying during the appointment so I'm not sure how much we took in. They gave us...

Ratatosk, We're going to try and bring in a diaper on Monday as well as "catch" some stool just in case the diaper doesn't work. 1/8 tsp DOES seem like a lot! I'm interested in why some patients are started on salt as a newborn and others aren't. Maybe it has to do with sweat test results...

Aboveallislove, Thank you so much for your thorough and speedy reply. It's always encouraging to hear about "success" stories, and I'm glad to hear your son is doing so well! We have read a lot about Kalydaco and are feeling blessed that this may be an option for her. The blogs are very...

Hi all, We are new here as our daughter was just diagnosed at 8 days old via her newborn screen. We are a little overwhelmed and have some questions we hope the CF community or other parents might be able to help us with. Her mutations are G551D and D1152H, anyone else out there with that...