Recent content by julie

Ambry genetics http://ambrygen.com/tests/cystic-fibrosis-testing has the most comprehensive testing available.

Lance, I'm the person they were referring to about the IVF scholarship. We were actually selected and awarded it but were already pregnant. It's through www.inciid.org here is website listing a bunch of reputable grants: http://www.affordingivf.com/2012/12/15/ivf-grants/ One thing I can tell...

Just know that they deny almost 95% of applications that come through to them initially. The initial appeal is also at about 90% denial rate. Are you on any IV or nebulized antibiotics? How often are you having sputum cultures? The surgery you mentioned, was it CF related? Have you been...

a simple semen analysis will tell you if there are sperm or not.

The men with cf who are infertile don't have "blocked" vas deferen's. They have ABSENT vas deferens. It's called Congenital bilateral absence of the Vas Deferens (CBAVD) and it occurs in roughly 95-98% of CF males, but not all. There is hope, IVF with ICSI is an option. I did that 9 years...

I also had success the first go round with IVF back in 2006. I have 8 year old triplets now ;-). I also had a website on the topic. The site is currently not hosted due to funding issues, but one of tech guys from this website helped me track down this archive. All the links still work and...

The questions you have about considering this major life step are COMPLETELY normal. I remember my ex husband (who has CF) and I discussing the very things you mentioned. Ultimately, we decided that we WERE going to have kids but we were going to make sure there were "safety nets" in place...

This sounds like an ADA issue. Those are "reasonable disability accommodations". File for unemployment.

The vas deferens is absent, not damaged. The sperm does die off quicker, but it is still produced. Check out my website, www.cysticfibrosismaleinfertility.com

Chris, any chance you know of any companies that offer coverage in Washington state?

Have you applied for Unemployment? How big is the company that you work for? (If it's over 50 you're protected by FMLA and they might have acted illegally by firing you). What state are you in? Here are some CF specific scholarships: 1. http://elizabethnashfoundation.org/ 2. NINE different...

SSI is not a state program, it is a federal program. As such, the state of ones residency is irrelevant. Just because CF is recognized is a disability, doesn't mean they meet the impairment listings. Here is the criteria: http://www.ssa.gov/disability/professionals/bluebook/ChildhoodListings.htm

It's very unclear what your options are and what you are asking us to help you with. Can you elaborate a bit?

Gene modifiers...the same reason why my identical twin boys are SO different medically and in their personalities. That's the quick and dirty explanation...

SSDI and SSI are two very different programs because of their income criteria. If you are on SSI/SSDI and collecting unemployment you are defrauding your states system of able, available and actively searching for work. SNAP (food stamps) are something you can get provided you meet the income...