Recent content by katzyloo

  1. K

    in reference to urgent message to worried grandma and candi81

    my son is still receiving care at a clinic. i have just spoke to one of the nurses and apparently ive to expect a letter in the post in a few days from our consultant who has sumarised our situation. i asked if they were discharged my son and they said no, however they are planning to start a...
  2. K

    in reference to urgent message to worried grandma and candi81

    my son is still receiving care at a clinic. i have just spoke to one of the nurses and apparently ive to expect a letter in the post in a few days from our consultant who has sumarised our situation. i asked if they were discharged my son and they said no, however they are planning to start a...
  3. K

    in reference to urgent message to worried grandma and candi81

    my son is still receiving care at a clinic. i have just spoke to one of the nurses and apparently ive to expect a letter in the post in a few days from our consultant who has sumarised our situation. i asked if they were discharged my son and they said no, however they are planning to start a...
  4. K

    in reference to urgent message to worried grandma and candi81

    HMW, could you elaborate as this is still on new to me. how reliable is this source? and where did it originate. is it something i can buy/ download as it may be helpful to show it to my consultant. i feel as though he has not done any background research. and previous question about my sons...
  5. K

    in reference to urgent message to worried grandma and candi81

    HMW, could you elaborate as this is still on new to me. how reliable is this source? and where did it originate. is it something i can buy/ download as it may be helpful to show it to my consultant. i feel as though he has not done any background research. and previous question about my sons...
  6. K

    in reference to urgent message to worried grandma and candi81

    HMW, could you elaborate as this is still on new to me. how reliable is this source? and where did it originate. is it something i can buy/ download as it may be helpful to show it to my consultant. i feel as though he has not done any background research. <br /> <br />and previous question...
  7. K

    in reference to urgent message to worried grandma and candi81

    f508 and C2657+2_2657+3insA Only features, i believe, from previous studies was men going for infertility treatment and thats when it was discovered. until then the sample hadnt had any lungs or digestive problems, but it was a novel group out of the entire sample size. my worry is what...
  8. K

    in reference to urgent message to worried grandma and candi81

    f508 and C2657+2_2657+3insA Only features, i believe, from previous studies was men going for infertility treatment and thats when it was discovered. until then the sample hadnt had any lungs or digestive problems, but it was a novel group out of the entire sample size. my worry is what...
  9. K

    in reference to urgent message to worried grandma and candi81

    f508 and C2657+2_2657+3insA <br /> <br />Only features, i believe, from previous studies was men going for infertility treatment and thats when it was discovered. until then the sample hadnt had any lungs or digestive problems, but it was a novel group out of the entire sample size. my worry is...
  10. K

    in reference to urgent message to worried grandma and candi81

    no he has no clinical symptoms specifically related to cf. he has low salt levels tested from urine samples and receives sodium. he has reflux, but the consultant believes he would have this without the two gene mutations present as he has had no chest infection to date, and he says reflux...
  11. K

    in reference to urgent message to worried grandma and candi81

    no he has no clinical symptoms specifically related to cf. he has low salt levels tested from urine samples and receives sodium. he has reflux, but the consultant believes he would have this without the two gene mutations present as he has had no chest infection to date, and he says reflux...
  12. K

    in reference to urgent message to worried grandma and candi81

    no he has no clinical symptoms specifically related to cf. he has low salt levels tested from urine samples and receives sodium. he has reflux, but the consultant believes he would have this without the two gene mutations present as he has had no chest infection to date, and he says reflux...
  13. K

    in reference to urgent message to worried grandma and candi81

    i completely agree which is why i cant understand why our consultant has withdrawn the diagnosis. im trying to contact two families in the us with children with the same mutations so my consultant can contact their specialist as these children receive preventative measures and are classed as...
  14. K

    in reference to urgent message to worried grandma and candi81

    i completely agree which is why i cant understand why our consultant has withdrawn the diagnosis. im trying to contact two families in the us with children with the same mutations so my consultant can contact their specialist as these children receive preventative measures and are classed as...
  15. K

    in reference to urgent message to worried grandma and candi81

    i completely agree which is why i cant understand why our consultant has withdrawn the diagnosis. im trying to contact two families in the us with children with the same mutations so my consultant can contact their specialist as these children receive preventative measures and are classed as...
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