Search results

Well we got work today that my son does in fact have CF however they are having a very hard time figuring out what mutation he has. Doctors say that there are SO many mutations and he was tested for the most common. He doesn't have the most common ones however he now has some sort of rare...

Well some of you might remember us not knowing what is wrong with my little baby boy. They have been and still are leading towards a rare form of CF even though his genetic testing was inconclusive and his sweat test did end up falling within normal. He is back in the hospital again and this...

Ok guys I need some advice! I am so frustrated I don't know what to do anymore. I have a five month old baby boy. He has been sick since he was literally 2 weeks old. No one knows what is wrong with my little guy. Now his pediatrician thinks he has a rare mutation of CF. Sweat test was...

Well Daegan was again admitted into the hospital for those poor little lungs. We appriciate all the prayers and hopefully we can go home soon.

Well my son had a genetic test done to determine if in fact he has CF....The results I got are as follows...."He has a low to moderate probability of having CF so we have to do a sweat test AGAIN" Now correct me if I am wrong but isn't the genetic testing to see if he has the gene or not? How...

Well we still haven't gotten my son's genetic test back yet to determine wether or not he has CF. In the mean time the poor boy has been sick for THREE MONTHS now. He is only 3.5 months old!! He has a horrible cough, horrible congestion, not gaining weight, low pre albumin levels and...

Hello. My son is currently undergoing a million tests to determine if he in fact has CF,.We are waiting on the genetic test results to come back but in the mean time his stool results came back showing high calprotectin (296.1) Is this something seen in babies with CF...Thanks

Hello everyone. Well this is my story. My son is 3.5 months old. He has been sick for over 2 months. The symptoms he has are constant congestion, coughing, failure to thrive, and diarrhea. He eats a lot for a little guy but loses weight. They have tested him for just about everything. The...