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    Asthma doctors

    Your CF team should have no probems addressing your Asthma
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    Vertex drugs and pancreatic function

    g551d I was in the double blind study for Kalydeco. And am prescribed it now. I was able to cut back on my enzymes and if I miss a dose of enzymes it is not a disaster right away. I can go almost a day w/o them (not on purpose. It just happens sometimes) I take creon 24. 4-6 with meals...
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    how tall are you?how much do you weigh?

    I'm 29, 5'4". weigh 139lbs. I've had no problems keeping my weight on for the last 10 years. Mostly in part to taking care of myself, getting sleep, and not partying, like I used to. I have gone up to as high as 157. A few times my CF doctor actually informed me I should lose a few pounds...
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    Do you take Mucinex??

    The only time I took Mucinex was when I had a cold. It worked pretty good, but after a few days I felt my mucus got to thin and I felt I had a hard time coughing it up. But keep in mind, everyone's different. Give it a try!
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    Do you take Mucinex??

    The only time I took Mucinex was when I had a cold. It worked pretty good, but after a few days I felt my mucus got to thin and I felt I had a hard time coughing it up. But keep in mind, everyone's different. Give it a try!
  6. L

    Do you take Mucinex??

    The only time I took Mucinex was when I had a cold. It worked pretty good, but after a few days I felt my mucus got to thin and I felt I had a hard time coughing it up. But keep in mind, everyone's different. Give it a try!
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    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Unless they are Pari Nebs you shouldn't boil/steam them (unless otherwise stated) Those clear plastic ones will melt in a second. I use a Tommee Tippee steam sterilizer. It works great and is a little...
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    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Unless they are Pari Nebs you shouldn't boil/steam them (unless otherwise stated) Those clear plastic ones will melt in a second. I use a Tommee Tippee steam sterilizer. It works great and is a little...
  9. L

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves)

    Trouble with Neb Cleaning (new equipments seems to cause more problems than it solves) Unless they are Pari Nebs you shouldn't boil/steam them (unless otherwise stated) Those clear plastic ones will melt in a second. I use a Tommee Tippee steam sterilizer. It works great and is a little...
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    Metallic Taste

    I agree with Mag. First thing I think of is blood. As far as the chest pain, could just be from coughing and your muscles being tight. Good luck!
  11. L

    Metallic Taste

    I agree with Mag. First thing I think of is blood. As far as the chest pain, could just be from coughing and your muscles being tight. Good luck!
  12. L

    Metallic Taste

    I agree with Mag. First thing I think of is blood. As far as the chest pain, could just be from coughing and your muscles being tight. Good luck!
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    Handi-cap parking spots for people with CF

    I have a handicapped placard (sign) I got it about 2 years ago. It was so easy. Like some others said, just needed my doctor to fill out a form along with my application (may have been the same sheet) and mailed it in. I work at a shopping mall so it saves my butt a lot with crappy weather...
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    Handi-cap parking spots for people with CF

    I have a handicapped placard (sign) I got it about 2 years ago. It was so easy. Like some others said, just needed my doctor to fill out a form along with my application (may have been the same sheet) and mailed it in. I work at a shopping mall so it saves my butt a lot with crappy weather...
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    Handi-cap parking spots for people with CF

    I have a handicapped placard (sign) I got it about 2 years ago. It was so easy. Like some others said, just needed my doctor to fill out a form along with my application (may have been the same sheet) and mailed it in. I work at a shopping mall so it saves my butt a lot with crappy weather...
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    medications for psuedomonas

    I used to be treated w/ Bactrim when I was little for pseudomonus (spelling?) But now I usuallyonly take it to treat MRSA. I take Cipro for one month and Tobi the next, alternating the 2 and also Zithromax e/o day.
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