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I started morepenem on Tuesday. No problems. Friday morning my torso was covered in hives. I visited the ER and was sent home with orders to stop the med and treat with benedryl itch cream Friday afternoon they send me to infusion center to try a new medication— don’t remember its name. Within...

Doc wants to get my lung infection treated. He wants me to walk into ER and ask to be admitted for two weeks. No orders placed... no pre-authrorizations... Nothing. My insurance company said if that happens they won't likely pay for services. Nurse and doc tried to tell me that things have...

I am 50 with CF. My pulmonary doctor suddenly no longer feels comfortable treating my CF. We have been going to see him rather than a CF doc at a CF Clinic is because CF docs and their facilty are out of insurance network (as is official "tune up" hospital location). I spoke with Compass...

We are entering cold and flu season and I am freaked. We have new "friends" and they are NOT interested in knowing anything about Cystic Fibrosis. Both my husband and I have tried to give them some basic information. (They are mostly my husband's friends). They attend the same church that we...

I live in an extremely dry climate. My hands have cracked, my feet look like the desert floor and my family has been having nose bleeds. Hubby does heating and air conditioning for a living... We already have a whole house air cleaner and now hubby wants to get a whole house humidifier. Are...

I just got notification from my insurance (government run insurance program) that my policy is getting cancelled at the end of the year. I am freaking out to say the least. My husband and I cannot afford insurance after December. I am not sure how I am going to get care for my lungs (and...

It was suggested that I had Hashimoto's thyoiditis a few years ago (4 years). No ultrasound, blood done work off and on. I went to get a physical and they found that my thyroid is quite enlarged... throat feels full and causing coughing. I am "finally" scheduled to have my thyroid...

I went today to have a dye contrast CT scan for my abdomen and pelvis. The nurse went to put in the IV and could not get in in my left arm (my good arm). She moved to my other arm (my bad arm) and she got the IV in and then put in the saline and all of a sudden my arm swelled and I had...

I started Zantac a few days ago. I did great the first day and then all of a sudden my stomach started to get messed up. I had been dealing with constipation before the Zantac and now all of a sudden the constipation is resolving. Is this normal?? My stomach gets upset with my morning dose...

I was just diagnosed with myofascial pain. The doctor didn't even tell me... I was reading my clinic notes that the doctor wrote after my appointment (posted online on my patient record). Obviously I am frustrated that the doctor didn't tell me to my face. Anyone else have this diagnosis???

I have horrible acid reflux and it gets down into my lungs. My doc said I need to sleep in the recliner. I have been doing so for over 6 months. I am in horrible pain from that recliner. It is firm but soft and... miserable. My legs cramp all through the night. My back is a total mess (I...

I developed a cold a few weeks ago. My sugars started to be higher than normal in the morning (115-118). Then I developed lady issues and my blood sugars stayed high in the morning (120-125). On top of this I am having almost constant hip, knee and ankle pain (getting it checked in a few...

I have to sleep in a recliner due to my GERD. Shortly after starting my back started to hurt. I have a vertebre that feels bulgy and feels bruised. There is no visable bruise. In horrible back spasms almost constantly now. I also got a cold last week and my cough slighly increased---it is a dry...

I am considering getting a second opinion on my CF care and MAC. I have family in Nebraska and used to attend the Pediatric CF clinic there from 15-2 years old. I know I would need to be seen by Adult program. Any one recommend a CF doc there??? I have heard of a Dr. Murphy.... Really...

I was treating my MAC for the past 6 months.... I had to stop the meds. I have horrible ringing in my ears. I have been off the meds for a month now and I still haven't gotten my hearing back. I was on amikacin for 3 months and zithromyicin for 6 months. The ringing drives me crazy and at...

I have been doing MAC treatment for 6 months. I gradually started getting side effects from the drugs and finally got so miserable I could not stand it (joint pain, joint swelling, "lady issues", bloating, horrible migraines and almost constant regular headaches and lower back pain, and...

I went to have a drug level blood test today for my MAC. They could not find a vein... anywhere. Horribly painful. They finally had to do a deep vein IV (just like getting a PICC but no long tube to my heart). Horribly stressful and now my arm hurts... and my wrist... and my hand. I WANT A...

I googled all the medications that I am on for MAC and CF.... I am having insomnia something horrible. The only thing that comes up is that zithromycin can cause insomnia. I am on 500 mg every day. Anyone else have this experience?? How do I get some decent sleep while following my MAC...

I am being treated for MAC (mycobacteria avium complex). I had my CT scan on Wednesday. The doc said that their is some progress on the healing of the hole in my lung. No idea how much... inches, centimeters. They are not happy with the little progress. They want to start me on even more...

The radiology department just called my doctor and said they found an esophageal dysmotility. I was having a CT scan for my MAC. Anyone else have this??? I can't move forward with treatment.... my insurance deductible started over and we can't afford the tests. The MAC treatment is costing...