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  1. K

    CF, marriage and depression

    I think the main thing is my children. I sometimes worry about leaving them without a dad due to cf. Its hard to not think about the future having children. My wifes dad died at 42 from a heartattack in 1998 and I experienced what I sometimes worry about first hand....
  2. K

    CF, marriage and depression

    Hey all, just need to post since I havent been here for a while. Im still hanging in there and chugging along. Just turned 35 on thursday, still with my 32% lung function and moving every day like theres no tomorrow. Anyway, recently my wife and I have noticed issues that have been around for a...
  3. K

    vx770 for some other mutations!

    Just got a call today about a program where I can start taking the vx770 now. Going for bloodwork, doing paperwork, and I should be on it in too weeks. Cant wait to see what it does to these old lungs. Kevin
  4. K

    vx770 for some other mutations!

    Just got a call today about a program where I can start taking the vx770 now. Going for bloodwork, doing paperwork, and I should be on it in too weeks. Cant wait to see what it does to these old lungs. Kevin
  5. K

    Well I've managed to Depress myself

    Well if I go into the hosp I will see the other Dr. H for my attending. I have an appt with my family dr to see what I can do about this depression. Also I do a duoneb before all my tx's and before I go to the gym. I have noticed that since doing my vest and tx's more my pulse ox is up at...
  6. K

    Well I've managed to Depress myself

    Well if I go into the hosp I will see the other Dr. H for my attending. I have an appt with my family dr to see what I can do about this depression. Also I do a duoneb before all my tx's and before I go to the gym. I have noticed that since doing my vest and tx's more my pulse ox is up at...
  7. K

    Well I've managed to Depress myself

    Well if I go into the hosp I will see the other Dr. H for my attending. I have an appt with my family dr to see what I can do about this depression. Also I do a duoneb before all my tx's and before I go to the gym. I have noticed that since doing my vest and tx's more my pulse ox is up at...
  8. K

    Well I've managed to Depress myself

    If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...
  9. K

    Well I've managed to Depress myself

    If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...
  10. K

    Well I've managed to Depress myself

    If you read my last post, my fev1 is down in the mid 20's. Its weird because I still can do everything I did before. I have started doing the treatments I did before, harder. It now seems that CF is taking over my life, and I keep thinking of what I have read about transplants. I was sick in...
  11. K

    Not a great Dr's appt.

    I spoke to the Dr today. Said im not falling of a cliff. I'm steady and am staying where I am/have been at since July. Were going to try Cayston since I've never had it. It should help me improve a bit. I have reactive airways too and I was very/have been very tight, so the prednisone...
  12. K

    Not a great Dr's appt.

    I spoke to the Dr today. Said im not falling of a cliff. I'm steady and am staying where I am/have been at since July. Were going to try Cayston since I've never had it. It should help me improve a bit. I have reactive airways too and I was very/have been very tight, so the prednisone...
  13. K

    Not a great Dr's appt.

    I spoke to the Dr today. Said im not falling of a cliff. I'm steady and am staying where I am/have been at since July. Were going to try Cayston since I've never had it. It should help me improve a bit. I have reactive airways too and I was very/have been very tight, so the prednisone...
  14. K

    Not a great Dr's appt.

    OK yes you've managed to accomplish scaring the crap out of me. Thank you. I dont know what to do here. I have been in the 40's and 30's for the last 5 or so years. I am having major anxiety and depression over this whole situation. Shouldn't my Dr have mentioned this to me before?
  15. K

    Not a great Dr's appt.

    OK yes you've managed to accomplish scaring the crap out of me. Thank you. I dont know what to do here. I have been in the 40's and 30's for the last 5 or so years. I am having major anxiety and depression over this whole situation. Shouldn't my Dr have mentioned this to me before?
  16. K

    Not a great Dr's appt.

    OK yes you've managed to accomplish scaring the crap out of me. Thank you. I dont know what to do here. I have been in the 40's and 30's for the last 5 or so years. I am having major anxiety and depression over this whole situation. Shouldn't my Dr have mentioned this to me before?
  17. K

    Not a great Dr's appt.

    I havent been in the hospital since jan of 07. Ive been steady since then but I go up and down in numbers, but i never come back up as high as I was. I dont feel bad at all. Its weird. I did this 2 times where I desat'ed. I dont do it at the gym though. I think it may be anxiety induced...
  18. K

    Not a great Dr's appt.

    I havent been in the hospital since jan of 07. Ive been steady since then but I go up and down in numbers, but i never come back up as high as I was. I dont feel bad at all. Its weird. I did this 2 times where I desat'ed. I dont do it at the gym though. I think it may be anxiety induced...
  19. K

    Not a great Dr's appt.

    I havent been in the hospital since jan of 07. Ive been steady since then but I go up and down in numbers, but i never come back up as high as I was. I dont feel bad at all. Its weird. I did this 2 times where I desat'ed. I dont do it at the gym though. I think it may be anxiety induced...
  20. K

    Not a great Dr's appt.

    My fev 1 is 23%. Lovely huh?
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