How do you know you need a tune up?

[leecee]

In an effort to keep privacy about what is going on because that's just me, how did any parents of CF'ers know their child needed a tune up? When I say child, I mean any child that can articulate about their bodies such as a 13 year old. Did they tell you how their body felt or was it something else?

 

[jaimers]

I'm not a parent but it was always a combination of how I was feeling along with PFT, X-ray, and sputum culture results under the "how I feel" category was not only what I was able to articulate to my parents and doctor but if my mom noticed a decrease in exercise tolerance, appetite, sleep habits, how productive my cough was, etc. If you think something is off with your kid, I would trust your gut and speak to the doctor.

 

[Printer]

If you are taking your child to MGH or Children's, I can promise you, the Doctor's will tell you when it is necessary, I would expect the same would be true of all of the Massachusetts CF Clinics.

Bill