this is fairly normal in CF and common for me, I would encourage you to make sure 2 things were done. First get a PT/PTT or a INR done to determine your clotting ability. As we don't break down Vit K very well this may part of the issue. Another thing is to have a High Resolution CT done of your chest, you probably have a bit bronchectasis, we all get it eventually, that might tell part of the story. As for the embolization we posted on it a few days ago, I have never had one....But you need to have a plan in order in case you beign to bleed again. You want a qualified, experienced radiologist do to it, we have enough problems without having a crackpot screwing us up!
My doctor actually wants me flown to my CF center 2 1/2 away rather than having it done here locally, locally is the biggest hospital in the state!
I can completely relate to you...I have PFTs in the high 80s and I find myself coughing up blood quite frequently sometimes. It is usually scary, but has never lasted very long...i'd say the most i've ever coughed up at one time would be 2 tablespoons.
Same here...when I have coughed up blood, (and it is scary that first time!) it usually is about a couple tablespoons and then tapers off after a half and hour to a couple hours. I always have some bad pain though after I cough up blood...I can tell right where the bleed is coming from.
And from what I was told, as the others have said...it can be fairly common in CFer's.
I have coughed up blood before and it is pure red blood. No mucus, just blood and I get this gurgling sound in my chest and I know I am going to be coughing up some blood. I would say it is a teaspoon. The gurgling is so weird though, has anyone else had that????? And it comes out of nowhere. I have not been coughing hard or anything and all of a sudden that sound comes and blood comes out! YUK!!
I know know exactly what you're talking about when you mention that gurgling sound. I started coughing up blood when i was around 21 years old with pft's in the high 90's and almost no lung involvement so it makes little sense why i should have been coughing up blood. I didnt really have a true problem with it till about 5 or so years ago when it would happen more often and slightly larger amounts then the usual 1 or 2 table spoons . Two years ago i coughed out about a whole 12 - 18 ounce cup of blood, and had to have my first embolization. The second embolization was almost the same amount. Now a days its the usual 1- 2 table spoons again ,thank God . I wish there was a permanent remedy to stop it for good. I started using L-Lysine recently to help with the lung bleeds. I read about a womans cf son who used L-Lysine and it helped to stop his bleeding problems . I am hoping for the same success <img src="i/expressions/face-icon-small-smile.gif" border="0">
~Diane 40 / cf / diabetes / b.cepacia
indeed i get the gurgle too!.... and yes its soo random all of a sudden and you know whats going to happpen next. sorry if this sounds disgusting but does anyone swallow it back down i have only coughed it up a few times and it made me sick so now i just swallow it??! and take the magic pils to stop it!!where would we be with out them !
I cough up blood alot and have to say it is really gross. I don't have cf though but cough up blood for my lungs. I also have a bad bad stomach and when I can't stop vomitting I sometimes end up puking up blood. My dr gave me an ulcer med that helped with the stomach though. My lungs happen when I have bronc trouble or pneumonia usually after the mucus changes colors. Sorry for rattling on hope everyone is doing well. It's nice to find out what my sons will have to deal with having cf