Page 1 of 3 123 LastLast
Results 1 to 10 of 30

Thread: "End Stage" CF

  1. #1

    "End Stage" CF

    So I was reading another post and it got me wondering. I'm a bit ignorant when it comes to this, but what exactly is "end stage"? Is it when your PFT's reach certain numbers, or is it when the rest of your organs start to fail and you're only predicted to live a certain amount of time? Someone posted in another area about being "end stage" prior to transplant, and I was just a little curious about the meanings of the dreaded phrase. Any imput would be appreciated.

    0 Not allowed!

  2. #2

    "End Stage" CF

    So I was reading another post and it got me wondering. I'm a bit ignorant when it comes to this, but what exactly is "end stage"? Is it when your PFT's reach certain numbers, or is it when the rest of your organs start to fail and you're only predicted to live a certain amount of time? Someone posted in another area about being "end stage" prior to transplant, and I was just a little curious about the meanings of the dreaded phrase. Any imput would be appreciated.

    0 Not allowed!

  3. #3

    "End Stage" CF

    So I was reading another post and it got me wondering. I'm a bit ignorant when it comes to this, but what exactly is "end stage"? Is it when your PFT's reach certain numbers, or is it when the rest of your organs start to fail and you're only predicted to live a certain amount of time? Someone posted in another area about being "end stage" prior to transplant, and I was just a little curious about the meanings of the dreaded phrase. Any imput would be appreciated.

    0 Not allowed!

  4. #4

    "End Stage" CF

    To me, end stage is basically what you said. Your lung function and QOL (Quality of Life) are getting bad... and death is around the corner unless you try a transplant.

    Sometimes that includes other organs starting to fail. But end stage, is the point of no return... youre not going to be able to bring your pfts back up, or get well enough to avoid death or a transplant.

    Man, I am not one with words at all, so this isnt a very good answer.... but I feel like you basically explained... and the words, "end stage" are pretty self-explanatory as well.

    0 Not allowed!

  5. #5

    "End Stage" CF

    To me, end stage is basically what you said. Your lung function and QOL (Quality of Life) are getting bad... and death is around the corner unless you try a transplant.

    Sometimes that includes other organs starting to fail. But end stage, is the point of no return... youre not going to be able to bring your pfts back up, or get well enough to avoid death or a transplant.

    Man, I am not one with words at all, so this isnt a very good answer.... but I feel like you basically explained... and the words, "end stage" are pretty self-explanatory as well.

    0 Not allowed!

  6. #6

    "End Stage" CF

    To me, end stage is basically what you said. Your lung function and QOL (Quality of Life) are getting bad... and death is around the corner unless you try a transplant.
    <br />
    <br />Sometimes that includes other organs starting to fail. But end stage, is the point of no return... youre not going to be able to bring your pfts back up, or get well enough to avoid death or a transplant.
    <br />
    <br />Man, I am not one with words at all, so this isnt a very good answer.... but I feel like you basically explained... and the words, "end stage" are pretty self-explanatory as well.

    0 Not allowed!

  7. #7

    "End Stage" CF

    Good point, let me clarify a bit more, what PFT numbers are considered "end stage"?

    0 Not allowed!

  8. #8

    "End Stage" CF

    Good point, let me clarify a bit more, what PFT numbers are considered "end stage"?

    0 Not allowed!

  9. #9

    "End Stage" CF

    Good point, let me clarify a bit more, what PFT numbers are considered "end stage"?

    0 Not allowed!

  10. #10

    "End Stage" CF

    Generally speaking you are considered for transplant below 30 percent fev1. Other factors come into play as well, but when you hit 30 percent you don't have much margin for error if you get sick. Even though some people may feel really pretty good at 30 percent, others have a hard time walking and are using oxygen. It really varies from person to person, but either way, there isn't much margin for error if you get seriously ill, which is why that is a good time to consider transplant. I got listed in the mid to high 20's and waited two years for transplant. When I got my transplant my fev1 was between 18-22 percent and I felt sick most every day.

    jfarel: bilateral lung transplant 6/23/10

    0 Not allowed!

Bookmarks

Posting Permissions

  • You may not post new threads
  • You may not post replies
  • You may not post attachments
  • You may not edit your posts
  •