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Thread: Shingles

  1. #1

    Shingles

    So i woke up today with a rash and went to the doctor only to be told it is shingles! she said that i got it because my immune system was down from being sick, i was on steroids (prednisone), and under a lot of stress.Luckily the pain isn't too bad yet but i heard it can get pretty bad

    makes me wonder if anyone else has gotten it because that sounds like it could be a lot of CFers. the doctor said that she had never seen anyone so young get it!

    Sue 24w/CF

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  2. #2

    Shingles

    Since you are not a transplant patient I hope you can get over this pretty quickly. Just take great care of yourself and do not worry as that is not going to help you. I believe Shingles is a virus related to the herpes, chicken pox family. This is just off the top of my head so I am not certain. Take the drugs they give you and relax and do whatever you can to get over this.

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  3. #3

    Shingles

    I have never had shingles myself, but have heard as well that it is related to Chicken Pox.

    I found this site with some info.
    <a target=_blank class=ftalternatingbarlinklarge href="http://hcd2.bupa.co.uk/fact_sheets/Mosby_factsheets/shingles.html">Shingles Virus</a>

    It would make sense that if it affects those with weakened immune systems that CFers could be susceptible, so long as they have had chicken pox ... especially with how often many are on steroids.

    Also to let you know ... a friend of mine got shingles in high school (we were 16 and 17 at the time) ... she had lyme disease which I guess may have triggered it. I don't remember the specifics about it, I just remember her getting it.

    Lindsey

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  4. #4

    Shingles

    My husband got shingles. I know others who have been on steroids who have gotten shingles.

    As the other poster said you can only get shingles if you have had chicken pox before. Many young CFers have never had chicken pox so maybe that's why she hasn't seen in so much in young folks.

    Shingles stink. Even after it has cleared you can be left with pain.

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  5. #5

    Shingles

    My friend had shingles when she was 16. It was after a bone marrow transplant so probably due to the steroids. I hope you feel better!!!
    Katy

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  6. #6

    Shingles

    I had shingles a couple years back, cant remember exactly what if anything they gave me for it, all I know is that it hurt badly( I'll get into what it felt like in a bit) and I remember using lots of Calamine lotion to help with the itch and help dry it up. I believe mine was triggerred more so from stress and the docs said the same thing as my health was quite fine for a good while before that and I wasn't on anything that could have triggerred it either. At the time I was going through alot of stress at the job I had and things were really getting to me, then one night I got this itch on my side that just wouldn't go away and it was so intense I couldn't ignore it. First after scratching it just turned to a red area on my side, then through out the night in my sleep I must have scratched myself to bits and by morning it was little tiny blister looking things forming, I thought it was some sort of bite. I went to work and it was really bothering me then I lifted up my shirt to show a co-worker who I confided in and she said I should go to the doctor 'cause it looked like shingles that a relative of hers had at one time, and she knew the stress was getting to me because she was the one who I would vent my frustrations to. Sure enough the doc said it was shingles and he made me stay home for some time because he said I needed to relax and also that people that never had Chicken pox before could get chicken pox from me while I had it.

    Anyway just to let you know what my understanding of it is, it is basically the chicken pox virus becomming active in the body again. What happens is that when someone gets Chicken pox the virus remains "dormant" in the spine(central nervous system). Most common triggers are stress and weakened immune system. Once it is "triggered" unlike chicken pox which can cover the body it only travels on nerve endings so most common places for it to show up is on the sides, back, chest(I think), head and face. It is rearer but very dangerous for it to come on the head and face as that indicates that it can go to the eyes and cause blindness and I think I've also heard in rare cases it can cause problems for the brain and sometimes even lead to death, but again that's very rare. Now for what it felt like....because it travels on the nerve endings you can immagine, shooting striking pains going from the blisters toward the spine and very sensitive, if it was touched I could feel the shooting pains travel along the nerves, nerves that before I had no clue were even there. Mine came on my side, only one side too thank God! At first it wasn't that bad pain wise, but as blisters became full blown instead of tiny things that you'd really have to look good to see that they were blisters, then the pain came!

    Anyway hope I helped and my advise is stay home and relax, use calamine lotion or something that'll help dry up the blisters and relieve the itch because when they get to the stage that they hurt the last thing you want to do is accidentally scratch it! And if you notice anything coming up on the face or head get to a doctor quick!

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  7. #7

    Shingles

    <div class="FTQUOTE"><begin quote>As the other poster said you can only get shingles if you have had chicken pox before</end quote></div>

    I actually got shingles at the age of 18 when I was in the hospital for premature membrane rupture (pregnancy). I had never had chicken pox although I had been exposed several times. They said I may have been just a carrier or had a resistence to them, but at the age of 25 I got them. The immunization that most young people get protects from chicken pox, but not against the associated diseases or infections that effect you after having them.
    Candace

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  8. #8

    Shingles

    Thanks for all the info guys! So for those who had it the pain is going to get worse? I have some blisters now but not a lot of pain. is it possible for it to just stay like that pain wise? \

    Thanks again<img src="i/expressions/face-icon-small-smile.gif" border="0">

    Sue 24w/CF

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  9. #9

    Shingles

    I just got over shingles last month. The pain wasn't so bad just like a sore muscle for a few days and then it itched pretty bad but I don't have any pain now. I was also worried about scarring but you can't tell that I had it at all. My friend also had it at around the same time and she had no pain at all through the whole thing just an itchy rash. Hope this helps.


    Beth

    By the way neither of us have CF just lots of stress in the past few months.

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  10. #10

    Shingles

    MY FATHER PASSED AWAY FROM SHINGLES SPREADING TO HIS BRAIN AND
    TAKING OVER LIKE THE PLAGUE.... THIS WAS IN 1987, AND FROM WHAT I
    STILL HEAR TODAY, WAS A VERY UNUSUAL
    SITUATION....<img src="i/expressions/face-icon-small-sad.gif" border="0"><img src="i/expressions/beer.gif" border="0"><img src="i/expressions/wine.gif" border="0"><img src="i/expressions/sun.gif" border="0">

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