Recent content by AimeeSue82

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    Favorite fiction books?

    Books i've enjoyed recently: the girl with the dragon tattoo (and the other 2 books in that series), the guernsey literary and potato peel pie society, the immortal life of henrietta lacks, the hunger games series, the wicked series. i recommend them all! ~aimee
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    Viagra

    Has anyone taken Viagra (drug name sildenafil) for mucus production? It's a vasodialator so it should open up the vessels in the lungs. I have a friend who was in a study for this but she wasn't able to stay in the study. They already use sildenafil for pulmonary hypertension, also. Thoughts?
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    Viagra

    Has anyone taken Viagra (drug name sildenafil) for mucus production? It's a vasodialator so it should open up the vessels in the lungs. I have a friend who was in a study for this but she wasn't able to stay in the study. They already use sildenafil for pulmonary hypertension, also. Thoughts?
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    Medicare & CFRD

    I just tried to get lancets and test strips filled at my pharmacy. They said Medicare denied my claim because "CFRD isn't really a diabetes diagnosis". They're saying CFRD isn't really diabetes so they won't cover my supplies!! I was just dx in June, but in July this same pharmacy filled scripts...
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    Medicare & CFRD

    I just tried to get lancets and test strips filled at my pharmacy. They said Medicare denied my claim because "CFRD isn't really a diabetes diagnosis". They're saying CFRD isn't really diabetes so they won't cover my supplies!! I was just dx in June, but in July this same pharmacy filled scripts...
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    Medicare & CFRD

    I just tried to get lancets and test strips filled at my pharmacy. They said Medicare denied my claim because "CFRD isn't really a diabetes diagnosis". They're saying CFRD isn't really diabetes so they won't cover my supplies!! I was just dx in June, but in July this same pharmacy filled scripts...
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    my hypothesis on the mechanism behind the clubbing of fingers

    My fingers and toes have a lot of clubbing and have since I was a kid, when my lungs were great. Since my lung function has dropped, they haven't gotten worse though. Perhaps it has something to do with the salt or the mutation. On a side note, if anyone ever figures out how to make it reverse...
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    my hypothesis on the mechanism behind the clubbing of fingers

    My fingers and toes have a lot of clubbing and have since I was a kid, when my lungs were great. Since my lung function has dropped, they haven't gotten worse though. Perhaps it has something to do with the salt or the mutation. On a side note, if anyone ever figures out how to make it reverse...
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    my hypothesis on the mechanism behind the clubbing of fingers

    My fingers and toes have a lot of clubbing and have since I was a kid, when my lungs were great. Since my lung function has dropped, they haven't gotten worse though. Perhaps it has something to do with the salt or the mutation. On a side note, if anyone ever figures out how to make it reverse...
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    pharmacy choice

    Does anyone use Foundation Care or CF Services Pharmacy for their drugs? Currently I only get Cayston from Foundation Care Pharmacy and everything else I get from Walgreens. But this month is the first month I've been on Medicare (with a supplemental insurance policy purchased separately) and...
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    pharmacy choice

    Does anyone use Foundation Care or CF Services Pharmacy for their drugs? Currently I only get Cayston from Foundation Care Pharmacy and everything else I get from Walgreens. But this month is the first month I've been on Medicare (with a supplemental insurance policy purchased separately) and...
  12. A

    pharmacy choice

    Does anyone use Foundation Care or CF Services Pharmacy for their drugs? Currently I only get Cayston from Foundation Care Pharmacy and everything else I get from Walgreens. But this month is the first month I've been on Medicare (with a supplemental insurance policy purchased separately) and...
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    Jewish National in Dever?

    I have been to National Jewish. I was a pt there for about 2 years after transitioning from Denver Children's hosp. They have been voted one of the 10 best pulmonary hospitals in the country for the last 5-10 straight years. When I went there the 2 primary CF docs were Dr. Nick and Dr...
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    Jewish National in Dever?

    I have been to National Jewish. I was a pt there for about 2 years after transitioning from Denver Children's hosp. They have been voted one of the 10 best pulmonary hospitals in the country for the last 5-10 straight years. When I went there the 2 primary CF docs were Dr. Nick and Dr...
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    Jewish National in Dever?

    I have been to National Jewish. I was a pt there for about 2 years after transitioning from Denver Children's hosp. They have been voted one of the 10 best pulmonary hospitals in the country for the last 5-10 straight years. When I went there the 2 primary CF docs were Dr. Nick and Dr...
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