Recent content by amlorr94

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    Starting Symdeko

    I made the decision this week to start Symdeko. I was avoiding it because of my Orkambi experience. I had severe panic attacks, gain 20lbs all in my torso, had my ankles swell up, had issues with my cycles, and was overall a stranger in my own body. Has anybody had a similarly poor experience on...
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    CF in the City

    Hello there! Any CFers in Manhattan? I've got a couple questions for you.... How do you deal with the cigarette smoke and air pollution? It feels constant, especially in the summer, and really aggravates my lungs. I just did two weeks of IV antibiotics and I feel like suddenly I'm coughing...