I am happy for you. Unfortunately Kalydeco is not approved in my country. Do you know any other children/adults who have the same mutation? I am interested how people who are not taking Kalydeco are feeling?
My daughter was diagnosed with CF- D110H and other very rare mutation of I class through prenatal screening. She has boarderline sweat test results. Is 9 months old with no clinical symptoms. Has never been ill.
Does anyone have the same D110 H mutation ?