Recent content by b4herbiesbug

  1. B

    Trikafta with no purge???

    I have been on Tirkafta for 2 months now. I have never had a mucus purge, though I was warned of it. Immediately as it built I have coughed less and gained 15lbs average. Having literal days of no unintentional cough. Pancreatic enzyme levels have been higher, though not normal levels.The only...
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    21 YO cf patient looking to move

    I currently live in the greater kansas city area and see the KU CF team regularly. I am looking at the possibility of moving to Phoenix Arizona. I have a roommate lined up if I do but other than that I would be alone with the nearest family over 2 hours away. I have more than just my CF to...
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