I am so so sorry. My son is 14 and I cannot imagine loosing him. He and I have been to counseling together as I too am the rock. I'm learning to be sad when Taylor's sad and allow him to express his feelings more openly to me. I don't know why I felt like I was going to cry and never be able...
Just wondering how others with this mutation are doing. My 14 year old son has this CF mutation and struggles with psudemonas. Seems like we can never get rid of it. He's a great athlete so exercise helps with airway clearance. Eating is a battle.
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