Recent content by dbtoo

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    Arizona--moving

    Moved from Phoenix to Tampa. Prefer Tampa! (Although, I don't go to the CF clinic, neither place, so I can't comment on either with regards to that.)
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    Moving to a new climate...?

    I moved from AZ to FL 18 months ago. When I finally got here, I was doing pretty bad. My doc's put me on O2 after I got established with a pulmonologist. But, after a year, things really seemed to turn around. I felt really good. The high humidty and heat days makes it tough to do things...
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    Oxygen at Night

    hey rosie, i started O2 last year. It's prescribed for 24/7, but I only use it at night. I would get some weazing when I would lay down, and the farce of a sleep study... well... let's just say that IMHO that's designed to sell products, not provide solutions. I don't use the O2 every...
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    How did you know?

    Bill, Bill... hahaha... do I detect a note of defensiveness in what you are writing? I don't have any need for your doc to call me, as credentialed as he is, he'd be way too narcissistic for me to deal with! This thread was asking about what worked individually. For some it's 10 pills...
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    How did you know?

    Bill, Bill... hahaha... do I detect a note of defensiveness in what you are writing? I don't have any need for your doc to call me, as credentialed as he is, he'd be way too narcissistic for me to deal with! This thread was asking about what worked individually. For some it's 10 pills...
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    How did you know?

    Not my calculations, Bill. It's the FDA's statements, not mine. High dosages of pancreatic supplement may lead to fibrosis colonopathy. <a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1511547/">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1511547/</a> <span>'More is not necessarily better'...
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    How did you know?

    Not my calculations, Bill. It's the FDA's statements, not mine. High dosages of pancreatic supplement may lead to fibrosis colonopathy. <a href="http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1511547/">http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1511547/</a> <span>'More is not necessarily better'...
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    How did you know?

    IMHO - it is being able to determine the amount of Fat you are ingesting into your diet. http://www.drugs.com/pro/creon.html Almost every CF doc will prescribe your enzymes based on your weight. As you get older, you can take more responsibility in determining your medical care. According...
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    How did you know?

    IMHO - it is being able to determine the amount of Fat you are ingesting into your diet. http://www.drugs.com/pro/creon.html Almost every CF doc will prescribe your enzymes based on your weight. As you get older, you can take more responsibility in determining your medical care. According...
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    how common is it to get kidney stones when you have CF.?

    ditto to lilmac1177 !!!!
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    how common is it to get kidney stones when you have CF.?

    ditto to lilmac1177 !!!!
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    Disability Question-Handicap Parking

    download the form from your state department of transportation website, take it to your doctor. If they are willing, they can fill it out and you can get a hanger.
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    Disability Question-Handicap Parking

    download the form from your state department of transportation website, take it to your doctor. If they are willing, they can fill it out and you can get a hanger.
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    Disability Question-Handicap Parking

    download the form from your state department of transportation website, take it to your doctor. If they are willing, they can fill it out and you can get a hanger.
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    Graduate School with CF

    MS in Information Management, got it when I was 52 yrs young... didn't think a PHd was worth the effort...
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