Recent content by Epona

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    Dartmouth clinic

    Who's your favorite doc at Dartmouth? I went there once to get a second opinion (I usually see the CF clinic at U of Vermont) and it seemed pretty much the same as my home clinic. I saw Dr. Ashare. She seemed very nice, but not an outside-the-box thinker. Anyone over there who is doing some...
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    Surprising Results with Essential Oils! Give it a Go!

    This is a very strange thing to hear. Have you seen a CF specialist yet? You either have CF or you don't. It's genetic. What do you mean by "it's not full-blown"? Does that mean that her sweat tests come out normal or borderline? There was another person on this forum who had CF-like symptoms...
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    High Fiber Diet??

    Well, how much of your colon was removed? The point of the colon is to reabsorb any water in your stools, so that would explain why you have such watery stools - you don't have enough colon to reabsorb the water. But there is probably a few other things going on too. CFers should not be on...
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    stressing out about how to feed everyone

    Has your husband discovered the GAPS diet/specific carbohydrate diet yet? These diets are specifically designed to treat the underlying problem behind diverticulitis and other gut diseases, primarily caused by carbohydrate malabsorption and gut dysbiosis. Here are some links...
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    help GAINING WEIGHT

    I agree with Marc0198 and Godfrey. Gaining fat ain't gonna work that well, trying to gain muscle with exercise and working out is probably the best bet. Also, DO NOT rely on the junk food that corporations like to label as nutritonal supplements like Scandishake and ensure. They are full of...
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    stressing out about how to feed everyone

    Props to Melissa75 for being on top of the latest science behind the new understanding of fats. Good fats (saturated fats from healthy, humanely-raised, grassfed animals; and plants like coconut oil) are great for the body and very necessary, and when consumed in moderation alongside an active...
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    Anyone else have reactive hypoglycemia?

    My morning routine is eating a small breakfast after I wake up and before my breathing treatments. This consists of my morning non-coffee drink (chicory root powder + 1 tbsp coconut oil + hemp milk + stevia), and maybe 1/2 a granny smith apple with tahini, or a stalk of celery with tahini and...
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    Anyone else have reactive hypoglycemia?

    I discuss this extensively on my website at this blog post: http://cfnaturalhealth.weebly.com/blog/reactive-hypoglycemia and about CF-related blood sugar issues here: http://cfnaturalhealth.weebly.com/cf-related-diabetes-and-impaired-glucose-tolerance.html. The main issue is that CFers have a...
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    Coffee

    Ah, it seems you're right. Caffeine is a vasoconstrictor. I got it flipped around. So I guess headaches are caused when withdrawal causes vessels to expand, causing pain. Now it makes more sense how caffeine causes high blood pressure. I wonder what effects vasoconstriction has on the lungs...
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    Coffee

    Coffee is a vasodilator, meaning it dilates and expands the blood vessels. This why it can help with cognition and energy levels for a short period of time, and also is why people who are addicted to caffeine get headaches when they skip a dose (the blood vessels become dependent on caffeine to...
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    Wrong DX

    Glad to help! I have lots of info on nutrition and how it affects the CF body (pretty much everything on my website would apply to you), including more about the GAPS diet. www.cfnaturalhealth.weebly.com Be well!
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    Soil and CF?

    Actually, the latest research is showing that in order to develop a healthy immune system, prevent infections, and prevent allergies, we MUST have constant exposure to the bacteria, viruses, fungi, and other pathogens in the environment, especially (healthy) soil. The human microbiome (the...
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    Persistent MRSA

    I've had MRSA for about 15 years, and it's become very very aggressive in the last 4 years or so. I have been trying my best to avoid being on antibiotics as much as possible, bc they wreak havoc on the whole body, esp. the liver, kidneys, and microbiome, but anytime I was off abx, I would have...
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    Wrong DX

    First of all no matter what diagnosis you're given, going on a GAPS (gut and psychology syndrome diet) most likely would help with the GI symptoms, and since all epithelial cells are connected, may clear up some of the lung issues too. I know that when I have GI distress, my lungs get more...
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    Severe Pancreatitis

    There is some evidence that pancreatitis may be linked to a low level of antioxidant intake, besides its connection with CF. Increasing the intake of antioxidants in colorful plants (especially leafy greens like kale and spinach, arugula, dark colored berries) may help prevent and treat...
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