Recent content by Haileysmommy

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    Mutation Database

    Which mutations does she have? I know my daughter has 2 less common ones for here in the US. She has M1101k and 2184delA
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    enterovirus 68 Virus 1000 cases in Colorado

    I have not posted on here in forever but read daily. We are in CO where there have been over 1000 cases. I called the CF team and they said the same as above. Hygiene, hygiene, hygiene. Wash your hands, use sanitizer, and don't hang out with anyone that is sick. We have also been extra careful...
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    PFT's, O2 Sats and Finger Clubbing - Survey

    I don't know the number of Hailey's lung function but they are decent O2-93-95% No clubbing as of yet.
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    PFT's, O2 Sats and Finger Clubbing - Survey

    I don't know the number of Hailey's lung function but they are decent O2-93-95% No clubbing as of yet.
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    PFT's, O2 Sats and Finger Clubbing - Survey

    I don't know the number of Hailey's lung function but they are decent O2-93-95% No clubbing as of yet.
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    CF Conference in Denver

    Ours went. But then or team is in Denver<img src="i/expressions/face-icon-small-happy.gif" border="0">
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    CF Conference in Denver

    Ours went. But then or team is in Denver<img src="i/expressions/face-icon-small-happy.gif" border="0">
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    CF Conference in Denver

    Ours went. But then or team is in Denver<img src="i/expressions/face-icon-small-happy.gif" border="0">
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    Tristan, Cassandra and Ryland are home

    That is wonderful. I thought I had plenty of time to send that package that I have had forever for you. I will make myself send it this weekend. I am so glad that the babies are doing well. I will keep your grandmother in my prayers
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    Tristan, Cassandra and Ryland are home

    That is wonderful. I thought I had plenty of time to send that package that I have had forever for you. I will make myself send it this weekend. I am so glad that the babies are doing well. I will keep your grandmother in my prayers
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    Tristan, Cassandra and Ryland are home

    That is wonderful. I thought I had plenty of time to send that package that I have had forever for you. I will make myself send it this weekend. I am so glad that the babies are doing well. I will keep your grandmother in my prayers
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    HELLO MY NAME IS:

    Haileysmommy=Leeann I am 25 H ave been married for 6 yrs. We have 3 girls. Brooke-almost 8 just a carrier, Aaliyah-4 not no CF(unsure if carrier), Hailey-20 months with CF We also have 2 dogs a snake and a frog We live in Colorado
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    HELLO MY NAME IS:

    Haileysmommy=Leeann I am 25 H ave been married for 6 yrs. We have 3 girls. Brooke-almost 8 just a carrier, Aaliyah-4 not no CF(unsure if carrier), Hailey-20 months with CF We also have 2 dogs a snake and a frog We live in Colorado
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    HELLO MY NAME IS:

    Haileysmommy=Leeann I am 25 H ave been married for 6 yrs. We have 3 girls. Brooke-almost 8 just a carrier, Aaliyah-4 not no CF(unsure if carrier), Hailey-20 months with CF We also have 2 dogs a snake and a frog We live in Colorado
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    New triplet pictures

    You all look so great. The babies are beautiful!!!!! Congrats again
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