Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff!
NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines committee recommended approval of the drug.
The deal means that CF patients in England will be among the first in Europe to access Kaftrio...
OMG...as even I have a hard time reading these forums! Of course I am shocked and saddened. Jeannine and I even met a few times in south Jersey. I always respected her opinion! And I am so sorry, I am just seeing this now.
I would love to reach out to her family, her daughters especially. my...
Lauren Brenneman and my article on breathing techniques, huff coughing, and mask wearing...Top 10 tips for Covid-19 from our respiratory community!
This is a great start as we reach...
As you can see from our survey graph...many of you are able to access your healthcare team through TeleHEALTH
Please take advantage of this new method of care! Because of COVID-19 many of your health care providers are able to get paid for this method!
Salt and Light,
Why am I not surprised that LittleLab4CF would write us the best thank you note ever for our survey! LittleLab4CF was our 100th participant and he graciously received his $25 Amazon Gift Card!
'Thank you for the Amazon.com Gift Card! I NEVER win things by chance, but it's a wonderful gift. My...
This video is from the chief COVID-19 doctor Dave Price at Cornell Weill Hospital in NYC. He is on the front lines taking care of the most sick patients.
He is almost giddy....he thinks avoiding this disease is SO possible.
Take away: I what all CFers already know and do
1. Wash your hands...
Our other hats here at cysticfibrosis.com is that we run a Physical Therapy clinic here in Cedar Grove NJ. Solutions are NOT easy. PT is High Touch as you know. Most outpatient PT patients are staying home now. Hopefully, in the future there will be a great need to get those who need...