Recent content by jamoncita

You should respond, "I wish I was normal, too." Try to look very sad about what a weirdo you are. I think by making a big issue of this your are basically affirming to him that he is indeed "abnormal." Tell him there are tens of thousands of people with CF, just like him, just as there are...

Hello! I'm 24 and have an FEV1 of about 70% when i'm well. Went in to the hospital last week and was down by a little over 10%. On my way back up, though! Yay!

hm... nice videos (except the last - very stiff and unnatural), but i don't feel like i connect with them.

A lot of people say it doesn't work for them but journaling has had an immense positive impact in dealing w my emotions related to cf. i began writing like a mad woman after my diagnosis and it was the only place i had to release my thoughts and feelings. At the time i couldn't yet talk about cf...

Time to sign her up for a sport! Let her be active and play! It does a lot to clear the airways!

He needs to engage in some kind of normal activity. Having to drop out of school sucks and takes away one more normal thing in our lives. He needs friends and something to distract him from the pain. And he also needs a good way to fully vent how he feels. Unfortunately, if he is in pain I...

hello, nuca! i'm just 24, and though maybe not completely an "adult," i can tell you things are looking good <img src="i/expressions/face-icon-small-smile.gif" border="0"> i was diagnosed at 16 and had a very hard time with the diagnosis. unfortunately i didn't have emotional support and so i...

I haven't read Capote or Grisham.. I'm just gonna throw out some books I have enjoyed. Love in the Time of Cholera, Lord of the Flies, Devil in the White City, Bel Canto, The Intimate Lives of the Founding Fathers, The Spirit Catches You and You Fall Down (that's especially a good one from the...

wow! that's an impressive improvement!

i have dreaded every single stay (i hate getting the picc placed), but have never had the option of NOT going when it was necessary. i guess it has helped me to have a big family living nearby so i get lots of visitors. probably also helps that i like being alone sometimes. i like the time i...

hi there! i've done a bit of traveling, and haven't had much issue with meds, nebs, or vest as carry on. i've taken tobi, pulmo, creons, inhalers, nebulizer and vest all with me, and these days i have cayston rather than tobi, but the rest is about the same (plus a few other pills). i've never...

i personally (on doctor's orders) use cayston two weeks on, two weeks off because at the end of my month off the cayston i always began to feel noticeably crummy (lots more phlegm and coughing and shortness of breath). i no longer take tobi. i find that cayston cleared me up miraculously the...

i personally (on doctor's orders) use cayston two weeks on, two weeks off because at the end of my month off the cayston i always began to feel noticeably crummy (lots more phlegm and coughing and shortness of breath). i no longer take tobi. i find that cayston cleared me up miraculously the...

64% as of early this month. it's down just a little due to a lung infection which has since cleared up.

64% as of early this month. it's down just a little due to a lung infection which has since cleared up.