Recent content by johngwisc

  1. J

    CFRD symptoms?

    A quick google search brought up this handy informational page: < <a target=new class=ftalternatingbarlinklarge href="http://www.diabetesuffolk.com/Complications/Cystic%20fibrosis.asp">http://www.diabetesuffolk.com/Complications/Cystic%20fibrosis.asp</a> > Of course, ask your doctor. Good luck.
  2. J

    Skateboarding

    Longboard skateboarding is on the top of my current list of things I'm loving. It's not terribly trick heavy, (although I suppose the real trick is finding roads where traffic isn't an issue), just a lot of hoofing it up hills and carving or bombing down. I find it is very much like...
  3. J

    New MS drug, maybe for cf?

    There is an article on this at: <a target=new class=ftalternatingbarlinklarge href="http://www.pharmacytimes.com/newsfeed.cfm?id=29109 ">http://www.pharmacytimes.com/newsfeed.cfm?id=29109 </a>
  4. J

    Traveling with the vest..tips?

    Depending upon where in MN you're coming home to, you may be able to contact the University CF clinic and arrange a loaner or possibly make arrangements for single daily. Also, prior to 9/11 and the changes in airline security, I flew with the 103 many times and simply made arrangements ahead...
  5. J

    prednisone

    I would echo the previous poster, regarding the need to wean off properly with the consult of your doctor. I believe that I reduced my dosage by cutting the daily dose 2.5 mgs, a week at a time. Generally, it is used to control inflamation directly related to infection. In short bursts, it...
  6. J

    prednisone

    I would add insulin dependence and cataracts to my list of effects from low dose/long term prednisone usage. Which, for me, was aprox 10 years at 10-20 mgs a day. I would also add, that for me, the benefits at the time fully outweighed the side effects. And after finally reducing my usage to...
  7. J

    rollerblading

    If you have a good place to skate, Rollerblading can be a really great way to exercise, (providing you dont break a wrist, of course). It can be low impact or high impact and as opposed to jogging can be easy on the joints. Also, it can be a great deal cheaper than getting into cycling...
  8. J

    PHYSIO VEST??

    Two kinds: <a target=new class=ftalternatingbarlinklarge href="http://www.sourcecf.com/medpulse.htm ">http://www.sourcecf.com/medpulse.htm </a> and the more popular, <a target=new class=ftalternatingbarlinklarge href="http://www.thevest.com/">http://www.thevest.com/</a>
  9. J

    Moving to Minesota

    Murgie, I would also recommend that you call the CF clinic at the U of M to contact the social worker. Contact information for the clinic can be found at: <a target=new class=ftalternatingbarlinklarge href="http://www.med.umn.edu/peds/pacc/cfcenter/home.html...
  10. J

    energy

    I rely on choosing something that I really enjoy doing to motivate, (ie. energize), myself. The drudgery of exercise equipment or a gymnasium, for me, aren't worth getting out of bed for. The pleasure of fresh snow for boarding or skiing in the winter or a dry sunny day for biking or roller...
  11. J

    Ports -- Just Curious

    Almost to a fault, I am very protective of my port. As long as I am conscious, I can't see myself giving up the control of dealing with my port. There are a litany of things I don't have control over in my life. My port access and maintanence is not on that list. I felt the same way about...
  12. J

    SSDI/Medicare

    It is automatic after 24 months. Despite the weightiness of the website, I would still direct you to: http://www.medicare.gov/ Good luck.
  13. J

    Advice Please

    My first reaction is to suggest that if your bf has cf, perhaps he should get a sperm count done to get a concrete determination. Nothing like science to ease one's mind. Good luck.
  14. J

    Advice Please

    My first reaction is to suggest that if your bf has cf, perhaps he should get a sperm count done to get a concrete determination. Nothing like science to ease one's mind. Good luck.
  15. J

    vitamin C

    I have been taking 8 grams of vitamin C a day (4 grams in the morning and 4 grams at night) for about 10-12 years. I found my bowel tolerance level and backed off my dosage slighty to where I wasn't causing diarrhea. After becoming aware of Dr. Linus Pauling's ( http://lpi.oregonstate.edu/ )...
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