Recent content by ldevoti

I run a secret group on Facebook for people with CF and NTM, mainly abscessus. If you want to join let me know. You will have to be friends with me or someone else in the group for us to add you, but you can unfriend once in. It is a super supportive, knowledgeable group. Mainly mom's. Lori Devoti

I know a number of people whose kids are on it and it hasn't caused any real issues for any of them, just the skin thing, and like others said, it hasn't been a bad skin color change, more of a tan.

CFMamas is very supportive. Here is the link... https://www.facebook.com/groups/Cfmamas/

As an aside, you can put members on an "ignore" list. Then I don't think they will see your posts. You will see that they have posted, but will have to take them off of ignore when you are logged in to see what they said. Sometimes the best thing. None of us need the negative energy some people...