Recent content by lilywing

In additon to CF, I have an auto-immune disease that causes my body to destroy normal healthy platelets. It's called ITP (idiopathic thrombocytopenia purpura). I have had chronic, critically low platelet counts (under 20) for the last 13 years, and bleeding is a huge issue and concern with...

I often wonder about this very question. How do parents know whether they, themselves, have CF unless they are tested for ALL the mutations? I wonder too, because my dad has suffered with digestive problems his entire life, and my mother has sinus issues.

I am most certainly not a pro-pill popper! I have a strong and violent gag reflex, and after 34 years, I still have a really hard time!! It's actually kind of embarassing lol

twentythreeyearsandcounting, I sent you a private message :)

Thank you, Ennio <img src="i/expressions/face-icon-small-smile.gif" border="0">

Thank you, Stacey. I did "uncheck" the box for the last message I sent. And I have zero messages in the box, so everything is gone. How do I send Ennio a message?

When I click on my Private Messages, there is nothing there? Where did my messages go?

I get chest physio therapy three times/day from a physio therapist while in hospital, every single admission. Is this a Canadian protocol? I don't know. From what I understand, different countries have different plans of treatment?

I asked my CF doctor about this years ago, and she told me that it happened because I was depressed! hahahaha I did my own research and learned about aquagenic wrinkling of the palms.

Thank you for all your input! I have canceled my trip. One contraindication of any pneumothorax is flying, and the recommendation is to wait for 6 weeks after a pneumothorax has completely resolved. It sucks!! If I was travelling within Canada, I might have considered it more, but I can't...

I am in hospital now with an exacerbation as well as a "small" pneumothorax. Over the last 9 days of this admission, the pneumothorax seems to be resolving! Without the aid of chest tubes!! In 13 days, I am scheduled to fly from Calgary to Colorado to attend a medical conference. Can I/should I...

It's called aquagenic wrinkling of the palms.  And it is a CF thing.  Although the doctors at my accredited CF clinic are clueless about it.  They told me it might be a symptom of depression l o l

It's called aquagenic wrinkling of the palms. And it is a CF thing. Although the doctors at my accredited CF clinic are cluelessabout it. They told me it might be a symptom of depression l o l

It's called aquagenic wrinkling of the palms. And it is a CF thing. Although the doctors at my accredited CF clinic are cluelessabout it. They told me it might be a symptom of depression l o l

I don't know what to say but that I am so sorry you are going through this. I have read your posts before, and felt useless to respond. Now I just want to say that I am thinking of you and praying for you and your daughter xo