Recent content by MommyMarie

  1. M

    f508 and 5T - looking for CRMS experiences

    Hi! My daughter is a year and a half and has the mutations df508 and 5T (we aren't sure her TG length as they don't test for it where we live). She was positive on newborn screening but has had 2 negative sweat tests since (17 and then 28). She is being followed as someone with CRMS. I'm...