Recent content by scarecrow

I've been pretty close and all I can say is that as your O2 level drops your brain starts to shut down, but it is pretty close to drowning. I've heard that a way to get an idea what it's like to have lung problems is to try breathing through a straw while you exercise but I never had to try it...

I've thought about the same thing. My problem is when I start coughing sometimes I have to stop everything and get "restarted". I would have to be able to get back upright in a HURRY for me to be able to try it. I used to do yoga every day, long ago. It felt great as long as you do it every day...

I work very hard to keep my immune system strong. Other than that I just try to stay away from people who are obviously sick. I hate taking change from someone who has a runny nose and coughing everywhere. On the other hand there are times when I sound like one of those people that I try to stay...

Those of you who have a lot of lung damage might want to look into Breo. I have started going to a pulmunologist and he has put me on Breo. It has really helped, at least for now. I've only been using it for about 2 weeks but my O2 levels have gone up by 3-4 %. That makes a big difference when...

I have been doing research on this for several years but have not talked to anyone who has done it. It sounds like it might work but it might also be a scam.

I'm not a doctor but if they aren't telling you to have him do some kind of exercise while he is on oxygen I think I would be looking for a new doctor. Lungs are resilient but only up to a point. I am sad proof that it is VERY hard to find a way to get that lung function back once it is gone for...

Well said!! Sometimes we get so wrapped up in trying to be "normal" that we forget what is important, that we are able to be part of the world in which we live and to contribute something, whatever it is, to that world.

I have been dealing w/ it for about a year now. Seems like O2 levels dropping makes it much worse. I was just reading that D3 levels being low may be connected to incontinence. Could sure use any suggestions other than diapers, but like you said, I guess diapers are better than the alternative.

I never took enzymes until much later but I used to hate having to sleep w/ the foot of my bed raised up and no pillows. I do remember some enzymes that were granules w/ a little spoon like a coke spoon. But since they tasted horrible and didn't do much good and were really expensive I never...

I have had problems w/ appetite since about the age of 30. I used to eat like food was going out of style but it seems like as my lung function went down so did my appetite. I tried the anti-histamine route but it made me like a zombie. I have found that exercise definitely helps w/ weight...

I think people are devi ded into fighters and quitters. Quitters w/ CF don't last very long. I don't know what happened but it's good that you're a fighter.

Could somebody who has more time than me do some research into Lactoferrin and Xylitrol to see if anyone has used them to treat lung infections. If you read the link above, that is what that Dr. is using to treat biofilms on Diabetic wounds that won't heal. those 2 things together seem to break...

Why would it be bad to do something that is good for you. Obviously it depends on what you are juicing and what else you are eating but I can't think of anything w/ CF that would make it dangerous to juice.

Congratulations!!!! Living beyond your "allotted time" does give you a strange sense of power doesn't it? I know I was supposed to die almost 50 years ago, but still hanging on; reminds me of the old poster of the kitten hanging by one claw sometimes but it is good to be alive anyway.

Sounds like this is working out so well that I can't imagine why I have always refused to use Tobi.