Recent content by Shani

My daughter is also 17 and her larger than normal rib cage really disturbs her. Unfortunately there isn't a great deal you can do about it. Her FEV1 is over 100% so it's not like she has really progressive lung disease.

Hi there I have a 17 year old daughter with Cf who was diagnosed at 9 1/2 weeks through sweat test. The diagnosis, at any age, is so bloody hard! I do empathise with you and your situation. I am here to tell you though, my daughter is going really well. Yes we have our ups and downs and...

If you log in through University Library or public library you can access for free in Australia. Not sure about anywhere else.

Hi all. Unfortunately Kalydeco (Ivacaftor) is not yet available in Australia. Well it is, but it is $300,000 per year (well outside the price range we can afford unfortunately). We are desperately seeking a way of getting the drug from USA or UK. Does anyone know if this is possible? Has...