Recent content by Swedishstar84

Hello everyone! I just wondering how long time should i wait to i contact my cf / transpl doc? For the last few days i have had problems with my stomache to keep the food i eat. But no idea if it is due because of creon enzyms or because tx doc change my antirejection meds and my stomache...

Hello only wonder if someone got pregnent after you had your lungtransplant ? How Did it go ?? I am thinking of My future and if its possible To have children after you have had a lungtransplant ? Hugs /Marie

Hello i have a question for My friend in spain who got a new bacteria called Enterobacter gergoviae , and doc have no idea who To treat it atm, have anyone Else this bacteria?? What meds do u have To treat it? Can it be treated ? Thank you hug /Marie

Hello everyone As a few of you know i got a fungus infektion after my tx and it has been stable for a long time but start to get worse with my eye again. And docs said its nothing to do other than remove the eye :( and its nothing i want. So i searching help in another country. So wonder if...

Hi i'm fr.o.m. Europe as well ( Sweden ) . And i know My doc told me it is 7-8 ppl that have the Gene to try kalydeco. But i dont have that Gene . I know we got it here and think ppl that need it have tried it hopefully. /marie

i can not belive 6 yrs has passed since i received My lungtransplant. I am happy only to be here 6 years later. to know My life could have ended only 6 months post transplant Due to the bad fungusinfection. But My life is good now and iam closer than ever to compete one of My goals in life. 5...

<span class="hps">Hi, <span class="hps">I<span>'ve been thinking about writeing <span class="hps">my <span class="hps">final exam (<span class="hps">university) <span class="hps">in another countryU<span class="hps">sa, Canada. <span class="hps">any <span class="hps">suggestions for <span...

<span class="hps">Hi, <span class="hps">I<span>'ve been thinking about writeing <span class="hps">my <span class="hps">final exam (<span class="hps">university) <span class="hps">in another countryU<span class="hps">sa, Canada. <span class="hps">any <span class="hps">suggestions for <span...

Hey i was searching on my ipod for new apps ( AppStore) and fund a few apps about cf. Spcially one called cysticfibrosis conect. It is free to download but i wonder f some of you know if its free to use? Seems like its a forum where you can chat ask questions etc. Thank u for any answer <img...

Hey i was searching on my ipod for new apps ( AppStore) and fund a few apps about cf. Spcially one called cysticfibrosis conect. It is free to download but i wonder f some of you know if its free to use? Seems like its a forum where you can chat ask questions etc. Thank u for any answer <img...

Hey i wonder if earinfections are common when you have cf. I used to have à lot of earinfections as a child. But today i had it again earinfection and my eardrum brust so on antibiotics now. Marie

Hey i wonder if earinfections are common when you have cf. I used to have à lot of earinfections as a child. But today i had it again earinfection and my eardrum brust so on antibiotics now. Marie

Hey i would love to come to NYC again<img src="i/expressions/face-icon-small-smile.gif" border="0"> They tx doc's don't know if the fungus are from my old lungs or not. The fungus could also have came due to low immunsystem after My tx. So only unlucky this happend 4months after my tx. but...

Hey i would love to come to NYC again<img src="i/expressions/face-icon-small-smile.gif" border="0"> They tx doc's don't know if the fungus are from my old lungs or not. The fungus could also have came due to low immunsystem after My tx. So only unlucky this happend 4months after my tx. but...

Thank you both. <img src="i/expressions/face-icon-small-smile.gif" border="0"> i feel better now but this with My visionproblem spcially after an check up. Things comming over me and i feel sad for awaile. Even if i know they can not do so much about it. Thank you again for your support <img...