Recent content by sweetdeal

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    My 1 Year Post Transplant Video!!

    Wow Charlie! Your story is inspirational! Thanks, from another cystic waiting for lungs...
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    CF awareness and advocating for organ donation

    Also posted in the Adult section, but I didn't want any of you to miss it: Hey fellow Canadians! The Adult Cystic Fibrosis Committee (ACFC) has an open position - Ontario Vice-Regional Representative. You can check out the details here: http://www.cysticfibrosis.ca/en/index.php I'm currently...
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    CF awareness and advocating for organ donation

    Hey fellow Canadians! The Adult Cystic Fibrosis Committee (ACFC) has an open position - Ontario Vice-Regional Representative. You can check out the details here: http://www.cysticfibrosis.ca/en/index.php I'm currently waiting for a double-lung transplant in Toronto and have been blogging about...
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    My transplant blog

    I posted this in the adult category, but don't want to miss any of you that are going through or will go though or have gone through the same thing. I've been on the transplant list for 1 week in Toronto, Canada and I've started a blog for my hometown, family and friends to follow. I'd love it...
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    My transplant blog

    Thanks! Good luck to you!
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    My transplant blog

    Hey guys. I've been on the transplant list for 1 week in Toronto, Canada and I've started a blog for my hometown, family and friends to follow. I'd love it if you'd take a look: http://livelaughlungs.blogspot.ca/ I'll be doing my best to educate and raise awareness for both CF and organ...
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    feeding tube and enzymes

    I do 2.5 cans of 2 cal hn. In my case I take 4 creon 25 before feeds. It would probably be a good idea for me to break up my enzymes and get up in the middle of the night to take some, but I guess I'm lazy?? I do pretty well as is though. I run my feeds over 8 hours as well. I actually don't...
  8. S

    feeding tube and enzymes

    I do 2.5 cans of 2 cal hn. In my case I take 4 creon 25 before feeds. It would probably be a good idea for me to break up my enzymes and get up in the middle of the night to take some, but I guess I'm lazy?? I do pretty well as is though. I run my feeds over 8 hours as well. I actually don't...
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    Calling all CF bloggers!

    Great idea! http://squeegee25.livejournal.com/
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    Calling all CF bloggers!

    Great idea! http://squeegee25.livejournal.com/
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    What to do between rounds of tobi?

    I know most of you do month on, month off. Does anybody else do continous, non-stop Tobi like I do?
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    What to do between rounds of tobi?

    I know most of you do month on, month off. Does anybody else do continous, non-stop Tobi like I do?
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    I want to know what percent of CFers work

    I worked full-time as a Staffing Consultant until 2008 when I ended up in the ICU. Working had me completely exhausted. I've been on long-term disability since and my FEV1 is about %25. Do plan on returning to my position someday after my future transplant (not on list at this time, but have...
  14. S

    I want to know what percent of CFers work

    I worked full-time as a Staffing Consultant until 2008 when I ended up in the ICU. Working had me completely exhausted. I've been on long-term disability since and my FEV1 is about %25. Do plan on returning to my position someday after my future transplant (not on list at this time, but have...
  15. S

    I want to know what percent of CFers work

    I worked full-time as a Staffing Consultant until 2008 when I ended up in the ICU. Working had me completely exhausted. I've been on long-term disability since and my FEV1 is about %25. Do plan on returning to my position someday after my future transplant (not on list at this time, but have...
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