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    Covid19 vaccine and CF

    Sorry~ Try: https://www.cff.org/Life-With-CF/Daily-Life/Germs-and-Staying-Healthy/CF-and-Coronavirus/COVID-19-Community-Questions-and-Answers/
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    Johns Hopkins Vaccines Report US STATES

    https://coronavirus.jhu.edu/vaccines/us-states
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    Our Survey Results!

    http://cysticfibrosis.com/large-scale-cf-survey-on-personal-health-and-wellness/
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    Covid19 vaccine and CF

    https://www.cff.org/News/News-Archive/2021/CF-Foundation-Strongly-Supports-COVID-19-Vaccine-Recommendations-for-People-Living-With-Cystic-Fibrosis/
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    Can Autoimmune Antibodies Explain Blood Clots in COVID-19? Dr Francis Collins

    From Francis Collins Blog: For people with severe COVID-19, one of the most troubling complications is abnormal blood clotting that puts them at risk of having a debilitating stroke or heart attack. A new study suggests that SARS-CoV-2, the coronavirus that causes COVID-19, doesn’t act alone in...
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    Crispr! Can it Repair CFTR

    Can CRISPR Repair CFTR in Cystic Fibrosis Patients? Read More:
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    from Dr Francis Collins Blog

    https://directorsblog.nih.gov/2020/09/17/experts-conclude-heritable-human-genome-editing-not-ready-for-clinical-applications/
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    Vertex joins with Moderna

    Follow the Link to read Vertex Joining with Moderna to form a gene editing pact for Cystic Fibrosis https://beta.firstwordpharma.com/story/5108129
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    from Dr Francis Collins Blog

    https://directorsblog.nih.gov/2020/09/03/citizen-scientists-take-on-the-challenge-of-long-haul-covid-19/ Coronaviruses are a frequent cause of the common cold. Most of us bounce back from colds without any lasting health effects. So, you might think that individuals who survive other...
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    tattoos on our FB page

    Thanks to Miss AlexBP and all who posted their CF related tattoos for National Tattoo day!
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    from Dr Francis Collins Blog

    It is becoming apparent that our country is entering a new and troubling phase of the pandemic as SARS-CoV-2, the novel coronavirus that causes COVID-19, continues to spread across many states and reaches into both urban and rural communities. This growing community spread is hard to track...
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    Eyes Burning on Trikafta

    I am so sorry about this LJ!
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    Eyes Burning on Trikafta

    Oh Windex! So glad you are back. Of course you are a LONG TIME member...I will report this mistake to Jim. Best of luck with your eye surgery and prayers for a successful recovery!
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    Francis Collins speaks of Covid Vaccines and Faith

    Hi All: Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff! https://nymag.com/intelligencer/2020/07/anthony-faucis-boss-on-why-things-could-be-much-better-soon.html?utm_source=pocket-newtab
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    NHS England agrees deal for Vertex CF Triple

    NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines committee recommended approval of the drug. The deal means that CF patients in England will be among the first in Europe to access Kaftrio...
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    NHS England agrees deal for Vertex CF Triple!

    https://pharmaphorum.com/news/celebrations-as-nhs-england-agrees-deal-for-vertex-cystic-fibrosis-triple/?utm_source=pharmaphorum+Daily+Newsletter&utm_campaign=f0c462094c-EMAIL_CAMPAIGN_2019_09_24_10_10_COPY_01&utm_medium=email&utm_term=0_a54496134b-f0c462094c-431716241
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    OMG...as even I have a hard time reading these forums! Of course I am shocked and saddened...

    OMG...as even I have a hard time reading these forums! Of course I am shocked and saddened. Jeannine and I even met a few times in south Jersey. I always respected her opinion! And I am so sorry, I am just seeing this now. I would love to reach out to her family, her daughters especially. my...
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    Speaking at the Roche Summit

    Lauren Brenneman and Jeanne Barnett will be speaking at the Roche Virtual Summit out of Switzerland Tuesday June 23. Video
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    We are featured in the UrbanSentinel

    https://www.linkedin.com/posts/jeannebarnett_urban-sentinel-june-2020-edition-activity-6674590419717808128-VXjj Lauren Brenneman and my article on breathing techniques, huff coughing, and mask wearing...Top 10 tips for Covid-19 from our respiratory community! This is a great start as we reach...
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    From our own Corey Nislow his Kidney Transplant story!

    Love you Corey! Thanks for sharing! Salt and Light, Imogene
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