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    Antibody Response Affects Covid 19 in kids and adults Collecting samples from kids with cystic fibrosis....
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    5 year old with CF recovers from Covid
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    Elizabeth Nash Foundation Scholarship

    Scholarship program The Elizabeth Nash Foundation awards scholarships to assist persons with CF to pursue undergraduate and graduate degrees. Grants range from $1,000 to $2,500 and are made directly to the academic institution to assist in covering the cost of tuition and fees. In selecting...
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    Johns Hopkins Vaccines Report US STATES
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    Our Survey Results!
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    Can Autoimmune Antibodies Explain Blood Clots in COVID-19? Dr Francis Collins

    From Francis Collins Blog: For people with severe COVID-19, one of the most troubling complications is abnormal blood clotting that puts them at risk of having a debilitating stroke or heart attack. A new study suggests that SARS-CoV-2, the coronavirus that causes COVID-19, doesn’t act alone in...
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    Crispr! Can it Repair CFTR

    Can CRISPR Repair CFTR in Cystic Fibrosis Patients? Read More:
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    Vertex joins with Moderna

    Follow the Link to read Vertex Joining with Moderna to form a gene editing pact for Cystic Fibrosis
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    tattoos on our FB page

    Thanks to Miss AlexBP and all who posted their CF related tattoos for National Tattoo day!
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    from Dr Francis Collins Blog

    It is becoming apparent that our country is entering a new and troubling phase of the pandemic as SARS-CoV-2, the novel coronavirus that causes COVID-19, continues to spread across many states and reaches into both urban and rural communities. This growing community spread is hard to track...
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    Francis Collins speaks of Covid Vaccines and Faith

    Hi All: Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff!
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    NHS England agrees deal for Vertex CF Triple

    NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines committee recommended approval of the drug. The deal means that CF patients in England will be among the first in Europe to access Kaftrio...
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    NHS England agrees deal for Vertex CF Triple!
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    Speaking at the Roche Summit

    Lauren Brenneman and Jeanne Barnett will be speaking at the Roche Virtual Summit out of Switzerland Tuesday June 23. Video
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    We are featured in the UrbanSentinel Lauren Brenneman and my article on breathing techniques, huff coughing, and mask wearing...Top 10 tips for Covid-19 from our respiratory community! This is a great start as we reach...
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    From our own Corey Nislow his Kidney Transplant story!

    Love you Corey! Thanks for sharing! Salt and Light, Imogene
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    As you can see from our survey graph...many of you are able to access your healthcare team through TeleHEALTH Please take advantage of this new method of care! Because of COVID-19 many of your health care providers are able to get paid for this method! Salt and Light, Imogene
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    Thanking LITTLELAB4CF for thanking us!

    Why am I not surprised that LittleLab4CF would write us the best thank you note ever for our survey! LittleLab4CF was our 100th participant and he graciously received his $25 Amazon Gift Card! 'Thank you for the Gift Card! I NEVER win things by chance, but it's a wonderful gift. My...
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    Most helpful video I have found about COVID-19 listen for positivity!

    This video is from the chief COVID-19 doctor Dave Price at Cornell Weill Hospital in NYC. He is on the front lines taking care of the most sick patients. He is almost giddy....he thinks avoiding this disease is SO possible. Take away: I what all CFers already know and do 1. Wash your hands...
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    Coronavirus roundup March 20 2020