Adam had a ent appt yesterday and everthing went well sinuses look good though he could do a little better with the sinus rinses. Adam had sinus surgery in 2008 and only does yearly check ups 09 and now in 2010. The Dr. told us to come back in a year.
After speaking to Jada yesterday she...
Just wanted to let you all know that Adam was admitted yesterday. Please keep him in your prayers. We are expected to stay at least two weeks. Lung function is way down.
The Dr. is saying that Adam sounds less crackley. So far nothing but normal flora growing on cultures...
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Adam was accepted for the study and my husband just texted me that he is going to get to do Azli.....Yay...
<b>Adam is on day 4 of the study and everything looks good. He has a slight cough but other than that he is doing well.</b>
<b>My husband is on his way to pick up Adam the Drs. let him leave today.
Thanks for all your prayers and thoughts.
So the Dr's have put Adam on insulin, that was last monday 4 units only right before his milk drip. I have two questions.
1. Did you gain weight and how long...
Adam's lung funtion went up a bit, but the drs. are not happy they are not letting him come home yet. They are going to repeat the ct scan to see if the fungus is coming back or if it is just mucus plugs. (pray for plugs). He is a little upset that he is missing homecoming tonight.
So we went in today to see if Adam qualified for the azli/tobi study. He went in and did pft's and he went down 15 percent. The dr. admitted him. We hope it is not a long stay. Pray that we can get out soon.
The Dr. came in to see Adam today and say he sounds alot better...
So we went to the clinic today. Adams ptf's went up YAY for that 26 percent. That is great. Adam's Dr. did not think they would go up and had planned a hospital stay.
Since my last post We added symbicort to his meds exactly 2 weeks ago. I wanted to try that or something that would...
The Dr. is prescribing symbicort for adam and taking him off the qvar.
Does anyone take this and if so, has it helped?
We are trying it for a month to see if it makes a difference if not back to qvar 80.
Thanks for any feedback
Adam's pfts have been going down recently (under 50). This is after spending 7 weeks in the hospital back in October the 23 til Dec the 13th...he had a fungus growing (not aspergillus). he was put on aphro b ivs for 1 month and then sent home with vfend and has been on for 6 months.
I want to try giving my son some nac (with dr. approval of course). But i have seem some messages that say don't take if you have a fungus (the gsh) is this the same or not.
any help would be appreciated.
So 14 years ago today my Adam was diagnosed with C.F. the worst news I could have gotten. I thought my world has ended and that Adam was doomed.
The past 14 years have been a blessing. Adam is a child that never gives up doesn't know the word quit and loves life to the fullest. When he was...
Adam goes to the clinic tomorrow...pray that his pfts have gone way up.
Well no change in the fev1.....i was so hoping it would go up.
but i guess it did not go down.
I don't know what to think.....