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    Totally TMI sorry

    This is a total TMI post but here goes... Last week and this week I have notice blood streaks in my BMs. Not totally full but streaking throughout. I asked my good friend who is a nurse and she said I may be irritated inside. I haven't called my DR yet since he is away anyways. But I didn't...
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    Air travel with Pulmozyme

    I will be flying in the next few weeks (its an 8+ hour flight) and I need to bring my pulmozyme with me. Anybody have any suggestions on how to fly with it? It is the only med I have that needs to be cold. Thanks!! <img src="i/expressions/heart.gif" border="0">
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    CF conference in Prague

    Since my DR is going to this conference I wanted to look it up and see what would be talked about. Some of the info is pretty cool and I thought maybe you all would be interested in reading over it too. <a target=_blank class=ftalternatingbarlinklarge...
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    Great quote

    I get an email everyday with a daily quote and this is todays. I thought it very appropriate for us CFers <img src="i/expressions/face-icon-small-happy.gif" border="0"> "You can't do anything about the length of your life, but you can do something about its width and depth". - Evan Esar <img...
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    Candice had her baby!!!

    Check out the pregnancy section <img src="i/expressions/face-icon-small-happy.gif" border="0"> <img src="i/expressions/heart.gif" border="0">
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    Weird pain

    I THINK it is a lung pain but I am not entirely sure. It ONLY happens when I am laying on my right side. It is right under my right breast and it hurts to inhale and then after I exhale at the very end it hurts. But as soon as I roll on my stomach the pain is gone. It has been a few days...
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    Birth control

    I want to start taking birth control. Just in case.... But I was always told not to take the pill because I am constantly on 2-3 abx. Supposedly they offset each other and neither works (or I am completely remembering wrong). So I wanted to see what all of you who are on BC take. I was...
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    I need some advice

    This post may be a little TMI but I need help!!! I have been off of IV abx since last Wednesday. I have never experienced the IV abx stools that every talks about, "luckily" I always got yeast infections. But this time not so much. My problem is that it still isn't going away, I'm going to...
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    Since I left the hospital (ok 3 days ago) when I sleep I have the weirdest dreams. last nights actually woke me up in a panic and SOB. I was dreaming that I was dying and couldn't breathe and I told my friends to let me die that I was done. I am also waking up throughout the night drenched in...
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    Going In

    Yeppers...I'm going in tomorrow. So I will be offline till we can kick whatever it is that is beating my a*s right now. My fever came back today full force and my O2 at rest is 84. I paged my DR and he said he wants to admit me and I said ok good. They are going to call me tomorrow when...
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    any ideas/ thoughts are welcome, please

    It's the Ambry Full Panel (I think). If your Ped is on board with you I would get them both tested. If they both come back No then you can move on to find another cause for their issues. I don't know if alot of DRs do the genetic testing before the sweat test or not. But you could do...
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    Should I take anything?

    I woke up this morning with a fever (100.2) and I can tell I have an infection brewing in my lungs. I couldn't fall asleep last night because I was coughing non-stop and it has been that way since I woke up. I coughed so hard this morning I threw up which hasn't happened in a VERY long time...
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    GREAT DOG STORY Anyone who has pets will really like this. You'll like it even if you don't and you may even decide you need one! Mary and her husband Jim had a dog named 'Lucky.' Lucky was a real character. Whenever Mary and Jim had company come for a weekend visit they would warn their...
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    Guess who is listed???

    I don't know if anyone keeps up on Gina's blog but I read it this mornng and she is listed! I hope you don't mind me telling everyone Gina!! So friends keep the prayers coming that she gets her new lungs SOON!!!! <a target=_blank class=ftalternatingbarlinklarge...
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    Sweat test numbers

    Emily (Emily65Roses) and I were chatting one night about sweat test numbers. She mentioned the highest number she had heard of before me was her number which is a little over 100 I think. Well mine was 160!!! I have the papers in front of me so I know its true <img...
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    Ok I sucked it up and bought one today. Looks pretty cool! But I can't get the ater to run through to the other nostril! I had to stop because I kept choking on the liguid eww!! I leand my head forward and pointed the nostril not with the pot in it down. It filled my nose and then went down...
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    Philadelphia support groups

    I know there are a few people on here from the Philly area so I am hoping you can help me. My mom wants to join a support group, but she doesn't want to be in the same one as me so that knocks out. I was wondering if anyone knew of a support place for family members of CFers that she...
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    Fixing my voice

    I need remedies for making my voice come back!!!! It is so hoarse and sounds so bad I pretty much squeak and that is it. I went out with my friends over the weekend and we watched a band play so of course we had to talk a little louder. And I have never really gotten it back from when I was...
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    Please check out the partners thread

    Please visit the Partners thread. We lost another angel and I am hoping you can offer some prayers and thoughts to her fiance. <img src="i/expressions/heart.gif" border="0">
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    First Day of Spring

    Happy first day of spring! I figured since it has been so long since anything fun and uplifting was posted I would start a fun new thread. So in honor of the first day of spring lets all say what we LOVE about the spring season... I'll go first: Flowers blooming for the first time Warmer...