Search results

  1. M

    Changing your user name?!?!?!

    Hi, I have emailed the contact us" option on this website a handful of times about how I go about changing my username and I still have gotten no response. What Im wondering is if its possible to do so or do I have to make a whole other profile? I have outgrown my username and no longer...
  2. M

    Traveling to Disney with CF, Vest, and Portable O2 concentrator?

    Thanks guys so much! It was all very helpful!
  3. M

    Traveling to Disney with CF, Vest, and Portable O2 concentrator?

    Hi, Im 25 with a moderate/severe CF. Over the winter I got pretty sick, I was sick all winter long with a pretty bad infection and pneumonia. Before the winter I was only on supplemented O2 when I got sick/infection and at night when I was asleep. Anyway, long story short, now I require oxygen...
  4. M

    Anyone else have reactive hypoglycemia?

    Hi, I have hypoglycemia too. My doctors didnt take me seriously at first because it would just drop at random and they couldn't monitor something that didnt happen in front of them......but i tried everything to get them to believe me, finally got blood sugar checker. Then recorded some of my...
  5. M

    Coughing alot but no need for hospital. need tips/ advice on how to control it.

    Hi, CF sucks lol I totally get where you are coming from though. My PFTs aren't as low as yours yet, sorry for the wording-mine are like 37% average. Has been much lower to. Im from North Dakota, so its like freezing here year round, ok so we get a few months of nice weather lol. I got a...
  6. M

    Help please!!!

    Thank you, and yes thats what the number is but i havent done that in years just never got around to changing my name on here. Thanks!
  7. M

    Help please!!!

    Im experiencing extreme sharp pains in one area of my chest and nothing is helping!!! Its worst when I cough. Im wondering if its a collapsed lung, never had one before. Please let me know if you have gone through one and what was your symptoms.
  8. M

    In PAIN, hospital NOT helping

    My hospital is crap too! Its an hour away from me to and they are completely useless!!!! I started crying when I read you post because all the words you were saying I say on a daily basis. This is not right and I so very much want to expose people to the harshness that we get from doctors. Not...
  9. M

    Need some CF friends!!!

    Hey guys, My name is Megan and I am 24 years old with CF, diagnosed at 6 months. I have one CF friend which I love to death but I feel so lonley still. I absolutly love talking to other CFers and feel the need for it right now, going through some rough patches!! So, I was wondering if anyone...
  10. M

    Nissen surgery for teen girls

    Hi, my name is megan lol and I am 24 with CF. I had the nissens done around that age of your daughter. The scars are so microscopic, they are almost hard to find. Its like four teeny dots for scars. I do remember tho for a while after the surgery I couldnt eat very much at once. I was used to...
  11. M

    Financial Help/Non-profit Orginizations!

    Hey guys, I need help lol yet again. I am struggling extremely bad with my finances. I cant work because I'm in the hospital at least every other month sometimes once a month. I have always struggled but I'm desperately trying to fix my credit and in order to do that I need some sort of...
  12. M

    This could be it...

    oh my goodness, im totally tearing up. I hope your brother makes it through this!!! Do me a favor and NEVER forget her, it sounds like she didn't have a lot of ppl and that one thing I feel I need when I die is loved ones; with CF it get get very lonely trust me I know. Its so wonderful that she...
  13. M

    Rude Staff

    I can relate big time!!! I always say thank you, sometimes twice to the same person just for that action lol. I think I can be a very likeable person/patient, I love talking with the nursing and staff and they seem to just love me.....most of them. Im not one to be walked on and take it quietly...
  14. M

    Anyone having trouble with their hospital

    I am struggling with this same problem; Im almost 24 with CF. I was diagnosed at 6 months at the hospital I go to right now but the problems Im having are just getting worse and more frequent. My main doctor has just retired and Im stuck with idiots and mean people. I have reported a couple...
  15. M

    Please help me!!!!

    Thanks guys, im just so torn bc Ive been going to this hospital since I was diagnosed. And I usually go to Minneapolis as much as I can, but with winter and money costs its hard to get there :( I wish I could have enough money to do a lot of my medical needs (sigh) lol
  16. M

    New series has cf girl in it!!

    Isn't the star CFer in Foreverland the brother on "Bates Motel"!!!!!!!!!!!!
  17. M

    Please help me!!!!

    Hi guys, Im having a really tough time with something. My regular doctor recently retired and Im left with getting a new doc and this nurse practitioner that used to work real close with my doctor. She has always been completely rude and mean to me but I was ok with it because I knew my doc had...
  18. M

    Hearing loss

    Hi hun, I too suffer from hearing loss. almost 50% of my hearing is gone and its all because I took Amikacin as well. I am very sorry to hear bout your problem but i would agree with beautiful soul and make an apt w your local hearing specialist!
  19. M

    New series has cf girl in it!!

    EVERYONE!!! The new series THE BATES HOTEL, based off ofthe movie Psycho! Never seen the movie but my boyfriend has and we startedwatching the Bates Hotel and in the second episode, just played, SPOILLERALERT: we just found out she had CF!! We were both floored and thru our arms inthe air bc the...
  20. M

    Gross, embarrassing things that come with CF!

    Hi everyone! I was so excitted to see that my topic got 37 replies, I thought no way! Now that Ive read through them all , Ive gotta say im a lil dissappointed at the fighting!! Some one mention that we all have CF and are on the same team as each other, CF against us!~!!! On a good note tho Im...