Search results

  1. S

    Increasing Lung Function

    Any tips on increasing lung function? I've had a 20% decline in the past month due to pneumonia and am trying to get mine back up, but it's not going very well. Thanks.
  2. S


    I'm curious to know if it is a good idea for us CFers to travel long distances? I spent Christmas in another state and came back sick. We are supposed to go with friends this year to Niagara Falls and I'm sort of afraid to travel that far and to another country. Thoughts? Experiences? Thank you
  3. S

    new for me

    This is a new thing for me and I'm hoping someone else has either had this happen or can shed some light on what it might be? I started with a sinus infection that has gone into my lungs (as usual) but it was all very, very sudden (which is unusual but I believe is due to a stomach bug). My...
  4. S

    Lung Functions

    I've had a decline in my lung function over the past couple of months. I just finished a 2 week round of IV antibiotics and while the infection is gone, I had no increase in lung function. I'm feeling pretty discouraged and frustrated. I was wondering if anyone else has experienced this and...
  5. S

    Upper Back Pain Due to Coughing??

    Does anyone here feel that when the coughing increases, the upper back is very sore? Then it's harder to take deep breaths. I've used a heating pad and that helps, but I'm not sure if this is related to my posture or coughing? What do you think? Anyone else experienced this? Thanks.
  6. S

    Living with CF

    This may sound like a stupid question, and if it is, I'm sorry. Up until the past year, I've always been rather "healthy"...all things considered, I guess you could I'm literally having to learn how to live with CF in some ways. I get the crud from time to time ESPECIALLY during this...
  7. S

    Sinus surgery?

    Since December, I've had horrible migraines and sinus issues, one after the other.Irealized today that I spent the majority of February on strong antibiotics for my sinuses. I went to the ENT today and he did a CT scan and told me that 7 of my 8 sinuses were inflammed. He suggested the sinus...
  8. S

    809 Trial

    I want to join this clinical trial so bad!!! Problem is, the nearest place I could test is a little over 4 hours. I'm a full time worker and can't leave work to live there...I was wondering what all was involved in these trials? I emailed UAB (the nearest one) to ask this question but no one...
  9. S


    Every spring when everything starts to bloom, my allergies kick off. Problem is, they stick around and become an infection. I'm doing pretty well right I was wondering if there was anything you had found helpful to help keep your allergies down?
  10. S


    I am Delta 508 and unknown. My doctor tells me that more information on the 809's release should be available in the fall of this year. Anyone know any other specifics? When I start to look around, it seems I get all kinds of conflicting reports.
  11. S

    Anyone from MS here?

    Are there any adults with CF here that live in Mississippi? If so, where is your CF care center?
  12. S


    I have taken Tobi for a while now but it is really bothering me this time. Just coughing...anybody else have this problem?
  13. S


    <P>I've apparently got an infection somewhere...and we caught it very early and started on the antibiotics.  But I'm still running fever, on and off.  Any suggestions on how to keep it down?</P> <P> </P> <P>Thanks.</P>
  14. S

    Digestive Enzymes

    <P>Which do you prefer?  Have you tried both?  Thoughts please <img src="i/expressions/face-icon-small-smile.gif" border="0"></P> <P> </P> <P>I started taking Zenpep several months ago but am wondering if I should ask to switch?  What are some of the symptoms to indicate that maybe I should?</P>...
  15. S

    CF and IBS?

    Are there any CFers out there who have IBS?  IF so, how are you treated?
  16. S

    Working from home

    I was wondering if any of you telecommute (work from home)?
  17. S

    Mucus plugs

    What's the best way to get rid of these awful mucus plugs? I'm doing my vest twice a day, Hypertonic Saline, Pulmozyme and fixing to start Cayston. I'm also on Bactrim and Cipro. Any tips on breathing better?
  18. S

    Question about my vest

    I was wondering if any of you ever experience a tightness and difficulty breathing after you've done your vest therapy? I was thinking it could be that "stuff" is getting moved around and blocking an airwave or something? Any thoughts/experiences? Thanks!
  19. S


    I'm starting Zenpep soon. Have any of you ever used this and what is your experience with it? Thanks.
  20. S


    I'm always tired after working all day, but realize the need to exercise. What's your motivation and what kind of exercising do you do? (But mostly, what's your motivation?)