Search results

  1. S

    I am not going to sit back anymore.

    Ok. My only child, my daughter Suzie, is 25 years old. She was diagnosed at 11 years old. We just learned of her mutation about a year ago. We always knew one was the Delta 508. They have finally found the other but they said no one else has it. And it does not have an easy name. I will...
  2. S

    Anyone else with bad nausea?

    My daughter is 24 and has CF. We know the one mutation is the Delta 508. The other is a very long sequence of letters and numbers and no one else has it. Lately she has become extremely nauseated. She has not vomited, but she does gag. Any help at all would be sincerely appreciated...
  3. S

    Please help me understand daughters mutations

    We found out last year my daughter's mutations. No one, according to them, has her specific mutation. Here is what it said: 869+1 869+4 delGTAA insACATTATT 1521 1523 delCTT (p.Phe508del) Legacy Delta 508 Sorry I know this is highly confusing. I got it that...