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    tattoos on our FB page

    Thanks to Miss AlexBP and all who posted their CF related tattoos for National Tattoo day!
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    from Dr Francis Collins Blog

    It is becoming apparent that our country is entering a new and troubling phase of the pandemic as SARS-CoV-2, the novel coronavirus that causes COVID-19, continues to spread across many states and reaches into both urban and rural communities. This growing community spread is hard to track...
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    Eyes Burning on Trikafta

    I am so sorry about this LJ!
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    Eyes Burning on Trikafta

    Oh Windex! So glad you are back. Of course you are a LONG TIME member...I will report this mistake to Jim. Best of luck with your eye surgery and prayers for a successful recovery!
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    Francis Collins speaks of Covid Vaccines and Faith

    Hi All: Remember Francis Collins as one of the founders of the CFTR in 1989? He even sang for us if you remember Lauren Beyenhoff!
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    NHS England agrees deal for Vertex CF Triple

    NHS England has agreed a deal with Vertex for its three-drug cystic fibrosis therapy Kaftrio, just days after the EMA’s human medicines committee recommended approval of the drug. The deal means that CF patients in England will be among the first in Europe to access Kaftrio...
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    NHS England agrees deal for Vertex CF Triple!
  8. I even I have a hard time reading these forums! Of course I am shocked and saddened... even I have a hard time reading these forums! Of course I am shocked and saddened. Jeannine and I even met a few times in south Jersey. I always respected her opinion! And I am so sorry, I am just seeing this now. I would love to reach out to her family, her daughters especially. my...
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    Speaking at the Roche Summit

    Lauren Brenneman and Jeanne Barnett will be speaking at the Roche Virtual Summit out of Switzerland Tuesday June 23. Video
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    We are featured in the UrbanSentinel Lauren Brenneman and my article on breathing techniques, huff coughing, and mask wearing...Top 10 tips for Covid-19 from our respiratory community! This is a great start as we reach...
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    From our own Corey Nislow his Kidney Transplant story!

    Love you Corey! Thanks for sharing! Salt and Light, Imogene
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    As you can see from our survey graph...many of you are able to access your healthcare team through TeleHEALTH Please take advantage of this new method of care! Because of COVID-19 many of your health care providers are able to get paid for this method! Salt and Light, Imogene
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    Working with COVID

    Joining APTA on Facebook to find out more about telehealth Watch the video I put up from Dr. Dave Price
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    Thanking LITTLELAB4CF for thanking us!

    Why am I not surprised that LittleLab4CF would write us the best thank you note ever for our survey! LittleLab4CF was our 100th participant and he graciously received his $25 Amazon Gift Card! 'Thank you for the Gift Card! I NEVER win things by chance, but it's a wonderful gift. My...
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    Most helpful video I have found about COVID-19 listen for positivity!

    This video is from the chief COVID-19 doctor Dave Price at Cornell Weill Hospital in NYC. He is on the front lines taking care of the most sick patients. He is almost giddy....he thinks avoiding this disease is SO possible. Take away: I what all CFers already know and do 1. Wash your hands...
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    Working with COVID

    M.K. Our other hats here at is that we run a Physical Therapy clinic here in Cedar Grove NJ. Solutions are NOT easy. PT is High Touch as you know. Most outpatient PT patients are staying home now. Hopefully, in the future there will be a great need to get those who need...
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    Coronavirus roundup March 20 2020
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    Roche begins phase 3 trial of actemra for covid 19 pneumonia
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    Moderna begins Coronavirus vaccine trial
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    Chinese coronavirus vaccine could be ready for trials next month? Pharmaphorum is a trusted source...