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    Homozygous for D508, PI but...

    The study of gut bacteria is getting more and more attention. I was fortunate enough to attend the NACFC this year and one of the speakers spoke about microbiota and the current research and attention that is ongoing. His name was Lucas R. Hoffman, M.D., Ph.D. He's a pediatric pulmonologist and...
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    Vest

    I suggest you contact the company directly. http://www.thevest.com/ My daughter's vest was paid for, in part, by our medical insurance.
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    Advice for Possible Hospital Admission for 3 year old

    We are currently in a similar situation and expect to be doing a bronchoscopy and possible admission this Friday. Waiting to hear back from Izzy's doc to be sure. She will be 4 in February (DDF508). She regularly cultures H. Flu but hasn't the past two cultures. She cultured pseudomonas once...
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    Gene therapy close in UK, but funds running out

    I know people are skeptical about gene therapy. We expected there to be more advancement by now (not just for CF) and more treatments available.<div><br></div><div>I am really surprised that there has not been more discussion on the forums here regarding the funding problem for the Gene Therapy...
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    Gene therapy close in UK, but funds running out

    I know people are skeptical about gene therapy. We expected there to be more advancement by now (not just for CF) and more treatments available.<br>I am really surprised that there has not been more discussion on the forums here regarding the funding problem for the Gene Therapy Consortium in...
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    Gene therapy close in UK, but funds running out

    I know people are skeptical about gene therapy. We expected there to be more advancement by now (not just for CF) and more treatments available.<br>I am really surprised that there has not been more discussion on the forums here regarding the funding problem for the Gene Therapy Consortium in...
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    TOBI vs. Cayston

    I'm very new to this, but my understanding is that TOBI is for pseudomonas (my baby is currently on TOBI for pseudo). I'm not sure what pathogen/bacteria Cayston is used for. Do you know what he cultured?
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    TOBI vs. Cayston

    I'm very new to this, but my understanding is that TOBI is for pseudomonas (my baby is currently on TOBI for pseudo). I'm not sure what pathogen/bacteria Cayston is used for. Do you know what he cultured?
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    TOBI vs. Cayston

    I'm very new to this, but my understanding is that TOBI is for pseudomonas (my baby is currently on TOBI for pseudo). I'm not sure what pathogen/bacteria Cayston is used for. Do you know what he cultured?
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    Going to the Zoo. Is it a bad idea??

    lol, thanks. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Going to the Zoo. Is it a bad idea??

    lol, thanks. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Going to the Zoo. Is it a bad idea??

    lol, thanks. <img src="i/expressions/face-icon-small-smile.gif" border="0">
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    Going to the Zoo. Is it a bad idea??

    This may be a totally paranoid question, but I dont' want to end up regretting later on. My CF baby is 7 months and I have 2 older children (7 and 2 yrs). I would like to take them to the zoo this weekend (mostly for my older kids). Any opinions on whether it is a bad idea to bring my youngest...
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    Going to the Zoo. Is it a bad idea??

    This may be a totally paranoid question, but I dont' want to end up regretting later on. My CF baby is 7 months and I have 2 older children (7 and 2 yrs). I would like to take them to the zoo this weekend (mostly for my older kids). Any opinions on whether it is a bad idea to bring my youngest...
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    Going to the Zoo. Is it a bad idea??

    This may be a totally paranoid question, but I dont' want to end up regretting later on. <br /> <br />My CF baby is 7 months and I have 2 older children (7 and 2 yrs). I would like to take them to the zoo this weekend (mostly for my older kids). Any opinions on whether it is a bad idea to bring...
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    Vest coverage denied

    I work with insurance companies everyday. They routinely deny or pend ALL CLAIMS OVER A CERTAIN DOLLAR AMOUNT. Don't be discouraged, that's what they are betting on! Use the resources at the Vest company. They probably have to appeal every vest they sell at least once. Every insurance company...
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    Vest coverage denied

    I work with insurance companies everyday. They routinely deny or pend ALL CLAIMS OVER A CERTAIN DOLLAR AMOUNT. Don't be discouraged, that's what they are betting on! Use the resources at the Vest company. They probably have to appeal every vest they sell at least once. Every insurance company...
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    Vest coverage denied

    I work with insurance companies everyday. They routinely deny or pend ALL CLAIMS OVER A CERTAIN DOLLAR AMOUNT. Don't be discouraged, that's what they are betting on! Use the resources at the Vest company. They probably have to appeal every vest they sell at least once. <br /> <br />Every...
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    Nose bleed in infant. Related to Tobi? Pulmozyme? Sinus/congestion?

    Last night, after Izzy's Tobi treatment, she had a slight nose bleed. Not a lot of blood, just coating the inside of one nostril. Today is the last day of her first Tobi cycle. She is 7 months old so can't tell us what she is feeling from these meds. She is also on Pulmozyme first thing in the...
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    Nose bleed in infant. Related to Tobi? Pulmozyme? Sinus/congestion?

    Last night, after Izzy's Tobi treatment, she had a slight nose bleed. Not a lot of blood, just coating the inside of one nostril. Today is the last day of her first Tobi cycle. She is 7 months old so can't tell us what she is feeling from these meds. She is also on Pulmozyme first thing in the...
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