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I myself don't have CF but hubby does and of course that means helping make sure things are clean around the house. Anyway, I have noticed that anytime after I clean the bathroom I get sick for days. It makes it hard to manage keeping things clean and safe for my hubby when I can't even clean it...

Hubby and I were looking to fly to the US from Canada so we could visit my family again. (Haven't in two years) but we have never traveled with his medication before other than enzymes. Now that he is on Pulmozyme, it needs to be refrigerated. <div><br></div><div>What tips would you have for...

I was just curious, does Pseudomonas or any other bacteria have a sweet smell to it when you are culturing it? I have been lying awake while hubby is asleep and I could smell a sweet smell coming from his breath as he sleeps. I have not smelt anything like it before and would just like to know...

My husband is going to be gettingh is first vest soon. We are getting it pre-owned from someone whom is willing to ship it to us. We are excited. Anyway, are there any tips for cleaning and caring for it you can provide? And where do you usually set up your machine? Anything you can share...

I have a couple of questions regarding some CF equipment. Firstly, I went into my husband's clinic about 6 months ago just to get some practice and making sure I was doing physio properly for him. She introduced some different equipment which of one was the hand held chest percussors. I tried...

I guess I am a bit more nervous than usual being it is around Christmas. I know he will do good but I guess I just need to go where the worrying is understood and have encouragement. If I don't keep myself positive then how can I stay positive and encouraging for him. If he is nervous, I need to...

Well I am from the US and currently in the process of immigrating to Canada to live with my husband who has CF. We are living in Newfoundland and everything (meds, doctor visits, xrays, ensure, etc) is all paid for and given for free. In the back of my mind I worry that our application for me to...

My mom is a sweetheart and lately when she went to the library she found a book about CF. She wanted to read it and she read me a bit of it, however, I could tell that most of the information was not true nor backed up with evidence. For example: Saying men with CF won't ever have biological...

If you have a blog and don't mind me following, please post. I just made a blog (it isn't that great lol) but I thought it would be nice to keep in touch with others going through CF or helping their family/friend go through CF. Mine is in my signature. <img...

Like I said in a recent post, my husband has an increased cough and has coughed up more mucus than seems normal. Well sometime during his night at work, he texted me saying he thinks he is sick because he was getting cold at work (which is rare for him) and his muscles are very sore. He then...

I am concerned because the last time he was coughing a lot, he was visiting me in the US. I didn't know much about his disease at the time and didn't see the warning signs. When we arrived back to his home in Canada he was scheduled for a routine checkup since he had been gone for 4 months. He...

I have tried to research on Google ways to clean the machine and mask parts but I have yet to find any easy ways to do so. Maybe I am just not looking in the right places. Anyway, I was wondering what techniques you use and find convenient. Also, how many times should we be cleaning the masks...

This past Friday my husband went for a checkup which of course required him to take his PFT's. Normally when he comes out from it, he can tell me a result but he actually didn't understand it this time. Normally they tell him like 68% or so but this time they told him that he was breathing 2.4...

Hello. My name is Alisha and I am from Virginia. I met my now husband online in May 2008 and he is from Canada. His name is Grant and we are both 20 years old. We just got married on May 28, 2010 and are happy to get a real start on our life. Though dealing with immigration for me to live in...