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  1. T

    Lynch Syndrome

    Thanks so much :) I'm still hoping to find someone with both (not just a family history) because I know a lot of my problems are specific to how the lynch syndrome affects me due to my CF. I'll try to find her though and see if she has it.
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    Lynch Syndrome

    Has anyone on here with CF also been diagnosed with Lynch Syndrome? Since Lynch Syndrome and CF both put you at high risk for colon cancer, and I have both, my doctors are considering doing a prophylactic colectomy...but I'd really like to find someone else who has maybe been through this.
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    Transplant and Mycobacterium abscessus

    I'm posting this because I have a friend who tests positive for mycobacterium abscessus and she needs a transplant. She can't find a center that will transplant her. Does anybody know of any places that can help her?
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    Coping with Christmas after a loss

    Thank you so much for sharing your experience and advice. I'm so sorry for your loss and am glad you are able to share holidays with two more special boys. I like your idea very much and will definitely discuss it with my fiance. His brother was cremated but perhaps we can set up a table top...
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    Coping with Christmas after a loss

    I hope it's ok that I'm posting this in the "Remembering" forum. I figured this may be a topic a lot of people could use some help with and that a lot of people have dealt with. 4 years ago, my fiance's brother died of CF at age 25. My fiance also has CF and received a transplant within 2...
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    Ear tubes and sinus infections

    Hi all! I don't regularly post, but I always appreciate everyone's insight on things so... For the past few years I've had increasingly bad sinus infections that usually manifest as headaches and ear popping. It's kind of strange, but I can almost always breathe through my nose. The problem is...
  7. T

    Ear tubes and sinus infections

    Hi all! I don't regularly post, but I always appreciate everyone's insight on things so... For the past few years I've had increasingly bad sinus infections that usually manifest as headaches and ear popping. It's kind of strange, but I can almost always breathe through my nose. The problem is...
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    Can two people with cf date?

    I have CF and have been with my boyfriend (who also has CF and is post transplant) for 3.5 years! We plan on getting married and provided Vertex is as wonderful as everyone says it is, having kids. It's definitely a personal choice. Our doctors and nurses have always been big on letting...
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    Can two people with cf date?

    I have CF and have been with my boyfriend (who also has CF and is post transplant) for 3.5 years! We plan on getting married and provided Vertex is as wonderful as everyone says it is, having kids. It's definitely a personal choice. Our doctors and nurses have always been big on letting...
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    How to transition into SSDI

    I'm 25 and recently my CF has gotten to the point where it's very difficult to keep up with my part time job (20 hours a week).  I used to work 30 hours a week so that I'd have hours "banked" for the time I'd take off during hospitalizations.  Now that I can barely keep up with the minimum I'm...
  11. T

    How to transition into SSDI

    I'm 25 and recently my CF has gotten to the point where it's very difficult to keep up with my part time job (20 hours a week). I used to work 30 hours a week so that I'd have hours "banked" for the time I'd take off during hospitalizations. Now that I can barely keep up with the minimum I'm...
  12. T

    How to transition into SSDI

    I'm 25 and recently my CF has gotten to the point where it's very difficult to keep up with my part time job (20 hours a week). I used to work 30 hours a week so that I'd have hours "banked" for the time I'd take off during hospitalizations. Now that I can barely keep up with the minimum I'm...
  13. T

    Cepacia has ruined my relationship with my sister

    Do you know what "the proper precautions" are? My parents forget that there's also an issue of me giving her pseudomonas. I'm pretty sure we have different strains, if she even has it at all. I've tried to find this out (from them and the meds she takes), but I don't think they pay much...
  14. T

    Cepacia has ruined my relationship with my sister

    Do you know what "the proper precautions" are? My parents forget that there's also an issue of me giving her pseudomonas. I'm pretty sure we have different strains, if she even has it at all. I've tried to find this out (from them and the meds she takes), but I don't think they pay much...
  15. T

    Cepacia has ruined my relationship with my sister

    Do you know what "the proper precautions" are? <br /> <br />My parents forget that there's also an issue of me giving her pseudomonas. I'm pretty sure we have different strains, if she even has it at all. I've tried to find this out (from them and the meds she takes), but I don't think they...
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    Cepacia has ruined my relationship with my sister

    The Lost Miler - Thank you so much for your support...I'm so sorry to hear about your situation <img src="i/expressions/face-icon-small-sad.gif" border="0"> In our hospital, I think it's especially difficult to have cepacia. You're separated from others, in a crappier part of the hospital...
  17. T

    Cepacia has ruined my relationship with my sister

    The Lost Miler - Thank you so much for your support...I'm so sorry to hear about your situation <img src="i/expressions/face-icon-small-sad.gif" border="0"> In our hospital, I think it's especially difficult to have cepacia. You're separated from others, in a crappier part of the hospital...
  18. T

    Cepacia has ruined my relationship with my sister

    The Lost Miler - Thank you so much for your support...I'm so sorry to hear about your situation <img src="i/expressions/face-icon-small-sad.gif" border="0"> <br /> <br />In our hospital, I think it's especially difficult to have cepacia. You're separated from others, in a crappier part of the...
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    Cepacia has ruined my relationship with my sister

    sdelorenzo - Are you concerned about cross-contamination in general? Is your sister-in-law not? How do your family functions work? At mine, my sister and I sit the farthest away from each other that is possible, I wipe down surfaces often and wash my hands a lot (in a sink that has presumably...
  20. T

    Cepacia has ruined my relationship with my sister

    sdelorenzo - Are you concerned about cross-contamination in general? Is your sister-in-law not? How do your family functions work? At mine, my sister and I sit the farthest away from each other that is possible, I wipe down surfaces often and wash my hands a lot (in a sink that has presumably...
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