Search results

  1. M

    Beccamom, how are you and your daughter?

    Beccamom, Jasey had clinic today and they changed her diagnosis to cf. not sure what happened, don't know why it went from CRMS to cf. she is starting cf vitamins, vit d, scandishakes. Talked about vest and breathing treatments in near future. Shocked. Email me again I didn't get the first...
  2. M

    Beccamom, how are you and your daughter?

    Both are ok. Jasey has been sick on/off since school started. She's lost some weight. We go to cf clinic on Wednesday and worried what they might say about it. I've tried to send you pm. I never received the ones you mentioned above! Not sure what's going on. How are you feeling? Are...
  3. M

    Beccamom, how are you and your daughter?

    I tried to send a pm but for some reason couldn't get it to work. How are you and Becca?
  4. M

    mild staph

    My daughter has cultured H. Flu three times and Staph. A twice. Her cf doctor doesn't treat either one of them.
  5. M

    Late diagnosis due to child's testing

    That is so crazy!! I hope you feel better soon.
  6. M

    Beating CF - I Am A Spartan

    Awesome!!
  7. M

    How to help someone who wont help themselfs

    I've tried to desperately to help my brothers. They don't have cf but a different medical problem. What it comes down to is you can't force anyone to help themselves. The only thing you can do is make sure she understands the impact this will have on her child. Tell her she needs to fight...
  8. M

    Rude Hospital Nurses

    It is terrible when you are in the hospital and you have a rude, condescending nurse!! I had a nurse removed when my Mom was in ICU. You have the right to be treated better than that and to request a different nurse. I work in the health field and worked at the very same hospital where I had...
  9. M

    Unclear situation with cf diagnostic

    I agree with others..you need to see another cf specialist.
  10. M

    CFRD?

    Jasey is 6yo. She is also on creon.
  11. M

    CFRD?

    My daughter is also having high readings occasionally and her OGTT was normal. She sees endo on the 31st. I am requesting a continuous glucose monitor for two weeks so we get a good idea of what's going on with her. How old is your daughter?
  12. M

    Praying for Micah

    Many prayers for your entire family.
  13. M

    Looking for chart showing bacteria/average age of detection.

    I found this article about residual cftr function vs minimal cftr function and when to expect to culture cf bacteria. In the article are tables with average age of when to expect to culture. Jasey is residual cftr function, I think. Www.biomedcentral.com/content/pdf/1465-99-21-11-140.pdf
  14. M

    Finally became a real Facebooker;)

    Sent friend request ...misty
  15. M

    Parents with CF who have children with CF

    I have no advice but good luck! That's a lot to handle! I know you will do a great job of taking care of yourself and your daughter.
  16. M

    HIGH blood sugar levels again!

    Jasey was acting tired, crying today so i checked her expecting it to be a little Low and it was 207. I just checked a little bit ago and it's been two hrs since she ate and it's 181. How can she have a result of 61 after two hr blood glucose tolerance and have 207 tonight?
  17. M

    Results of OGTT...

    Endo just called. She said all the results aren't back yet from the OGTT. She will know more once she gets the results in. She said to make sure she eats and doesn't skip meals while on vacation. If she is acting funny and blood sugar is below 60 to call squad. She said Jasey's weight is...
  18. M

    Neuropsychiatric events with Singulair

    I tried taking singulair with Advair this past spring and it made me feel odd so I stopped taking it. I didn't feel right on it and it didn't help anyways.
  19. M

    I have CF and I lost my older brother from CF

    I don't know what it's like to lose a sibling especially when you both have the same disease but I do know what it's like to lose both of my parents. My mom had pulmonary fibrosis and chronic pneumonia. I watched them both die from respiratory distress. I know it's not the same but just...
  20. M

    Staph A now in urine

    Has anyone else also cultured Staph A in their urine? Jasey has cultured it twice in her throat swabs but now she has cultured it in her urine. I don't know if this is normal or should I be concerned? At Cincinnati children's you can get online and read lab results prior to talking to...
Top