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  1. M

    Beccamom, how are you and your daughter?

    I tried to send a pm but for some reason couldn't get it to work. How are you and Becca?
  2. M

    HIGH blood sugar levels again!

    Jasey was acting tired, crying today so i checked her expecting it to be a little Low and it was 207. I just checked a little bit ago and it's been two hrs since she ate and it's 181. How can she have a result of 61 after two hr blood glucose tolerance and have 207 tonight?
  3. M

    Staph A now in urine

    Has anyone else also cultured Staph A in their urine? Jasey has cultured it twice in her throat swabs but now she has cultured it in her urine. I don't know if this is normal or should I be concerned? At Cincinnati children's you can get online and read lab results prior to talking to...
  4. M

    Results of OGTT...

    Well, now I don't know what to think. Originally I thought she was having episodes of hypoglycemia and then we started testing at home and she never had any lows but she had some highs. The results today were all normal except the two hour one was a little low. Fasting - 84, 30 minutes -...
  5. M

    Sould we be doing breathing treatments

    Should my dd be doing breathing treatments and vest? She has not been prescribed this. Our cf doctor said her lung function is good and she has only cultured staph A. From my understanding most people don't treat. Any thoughts?
  6. M

    6yo with possible CFRD...

    I already posted in adult forum. Endocrinologist has had us checking my dd blood sugar levels since yesterday. She had one slightly high yesterday two hrs after breakfast 132 and one high today two hrs after lunch 164. I had her play outside for a little while and took it again it was 147...
  7. M

    CFRD. Just checked two hrs after lunch is 164

    Ive been testing my dd blood glucose levels since yesterday. The highest yesterday was 132 two hrs after breakfast and the highest so far today is 164 two hrs after lunch. I'm scared. Any advice?
  8. M

    Blood glucose levels so far...

    At bedtime 103 Before breakfast 90 Two hrs after breakfast 132 - I know this one is a little high according to a chart I found for cfrd in 5 - 12 yo. Two hrs after meal should be between 80 - 120 Any thoughts yet?
  9. M

    Hypoglycemia and cf....

    I posted on adult forum too. I'm afraid my dd has this. She scared the crap out of us this week. One morning we couldn't wake her up and almost called squad. She finally made a noise and then started coming out of it. Her fasting blood glucose level a few yrs ago was 50. Which I've always...
  10. M

    Daughter has cultured Staph. A

    Can stap a be a precursor for pseudomonas? I've read two articles that lead me to believe in cf it can be a precursor to pseudomonas. Any thoughts?
  11. M

    Blood in stools?

    Jasey had blood in her stools twice last week and again the other night. Does anyone else have a problem with this? Her cf doctor is referring her to GI. Her stools have been tested for bacterial infection and parasites. They've only tested positive for blood. She was in the hospital a few...
  12. M

    How old was your child when they first cultured pseudomonas?

    Curious, how old was your child when they first cultured pseudomonas?
  13. M

    Jasey was in hospital wed thru fri for c-diff colitis

    Is c-diff common with cf?
  14. M

    Other daughter is getting tested.

    The CF specialist is going to test my other daughter (McKenzie) colon for the decreased CFTR function. She is on 8.5 squares a day to have a bm, constant abd pain and numerous URI since infancy. She is 11 yo and has lost 10 pounds in the last few months. Her sweat tests were negative; the...
  15. M

    Update with Jasey

    Hi, just wanted to give an update, haven't been on here for a while. My other daughter has been sick for months. Jasey is still growing and gaining on enzymes, however, she is still ftt but overall doing good.
  16. M

    Throat culture results

    <br>I can get online and view Jasey's tests results. Her throat culture results were posted today. I don't know if I should be concerned or not. I don't know what is normal. Can anyone tell me anything about this result?Results: moderate haemophilus influenzae; beta lactamase negativeThanks for...
  17. M

    CF appt...Jasey gained on enzymes

    <br>Jasey gained 2lbs from being on enzymes.  She has never gained that much in that amount of time.  They increased her enzymes in hopes that she will gain more and that we will be able to decrease the ex-lax even more.  He thinks she is mild PI.  He also thinks that the decreased cftr function...
  18. M

    If anyone is interested...

    <br>The name of the test they did on my daughter's colon tissue that is positive for cf is intestinal current measurements or measurement of ion transport in rectal biopsies.  I find it very interesting. 
  19. M

    atypical cf, cf related disorder, cf related metabolic disorder

    <br>Go to google and type in cystic fibrosis related metabolic syndrome and scrool down until you see the cf related metabolic syndrome title with vidstream underneath and javascript required out to side.  I was able to click on it and listen to the lecture and read the powerpoint.  Let me know...
  20. M

    Now worried after reading posts on atypical cf or cf metabolic syndrome

    After reading thru the posts on atypical cf , I am very concerned for my 5yo daughter.  She is currently diagnosed as cystic fibrosis metabolic syndrome by a cf specialist in a cf accredited childrens hospital.  He is also one of the few cf docs that are testing colon tissue for cftr function. ...
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