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Hi all, I figured I would post here just in case anyone else has experience with this, but I am also working with my Cf specialist and infectious disease specialist (and national jewish) as well so I do have good input. I have long standing mycobacterium avium (MAC) infection. I have been...

Has anyone infused Colistin at home using premixed IV balls? If so, how long did they last in the fridge? I have infused Colistin at home before but I had to reconstitute the Colistin with sterile saline daily and inject it into Eclipse IV balls each day (or into an IV bag depending on my...

What are the benefits of oral versus IV antibiotics, for you? Or, what led you to do your first course of IV antibiotics?

I recently began going to the UW Seattle clinic and I really dislike it. I could go on and on but besides the lack of infection control protocol they also get my cultures wrong (wrote pseudomonas in my file until I ask the doctor point blank to double check and then they realize I'm right but...

I am wondering whether anyone uses a UVB lamp (sun lamps, sometimes also used to treat seasonal affective disorder) to increase Vitamin D levels? If not, what did you do to successfully increase your levels? I already take water soluble forms of Vitamin D and now also have a prescription for...

Not sure where to best post this or even how to word it. I have seen several people in various threads talk about how they are going to find out their 2nd or both mutations soon. I am also doing this soon through the John's Hopkin's mapping study. I have one F508 mutation, but the other is...

I am curious as to how others manage their diabetes and the severity of their diabetes? I have been diabetic for over ten years and insulin dependent the whole time. While I always need insulin it seems like I need more or less just given the season or day of the week or anything and this is...

I am buying a portable nebulzier compressor for traveling. I have read conflicting reports of whether Pari trek works well for pulmozyme and tobi. My nurse has suggested this one to me... Anyone know? If anyone has suggestions for other portable nebulizers, It needs to be dual voltage and also...

Hi All,<br>This has probably been discussed quite a bit already but I would like to know other people's experiences with their breathing treatments. What types do you do, how do you do them, what order, are any mixable, etc? How do people feel when they skip a day of treatment? What breathing...

Long story, read to end for actual point <img src="i/expressions/face-icon-small-wink.gif" border="0">. <br><br>One month ago I switched CF clinics. At my first visit to the new clinic I cultured Pseudomonas (PA). At that time I thought I had only cultured it once in 2006, and had never been...

Hi,<br><br>I guess I cultured Pseudomonas for what is pretty much the first time. I did culture it once in 2006 but didn't have treatment and *supposedly* haven't cultured it since. The problem is that I am currently doing treatment for MAC 3x weekly (ethambutol, azithromycin, avelox). My CF...

Hi All,<br><br>I have cultured Mycobacterium Avium (typically referred to as MAC) for several years now.  I started medication for it 2 years ago but had to stop after 6 months because the combination of all of those medications made me feel quite sick.  <br><br>I currently culture regular old...