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Hello all, we are desperately trying to move back home to Arizona. We are currently in Minnesota under state health care and are thankful that they cover all of our boys' expenses. Arizona has no state aid as far as I know of? And all the jobs the hubby is finding have the insurance plans that...

We just received our new precision medical 50 PSI compressor. I read somewhere that 25 PSI is a good PSI to use. But our respiratory therapist told us to just stick with 8 PSI. We go to the University of Minnesota CF clinic, and they want CFers to be nebbing something the whole time they are...

We just received our new precision medical 50 PSI compressor. I read somewhere that 25 PSI is a good PSI to use. But our respiratory therapist told us to just stick with 8 PSI. We go to the University of Minnesota CF clinic, and they want CFers to be nebbing something the whole time they are...

My husband is looking at a job opportunity in Minnesota in the next couple weeks. We are trying to figure out if we can even afford to live there. Does anyone know of healthcare programs my boys could qualify for? blessings, missa

We are trying like crazy to get back to the mainland!!! But the hardest part we will encounter is making sure we can afford the medical care or that we can get assistance from the state. If anyone has lived or lives in Nevada, we would love as much info as you can give. Would you mind telling me...

So, any of your CF docs talking about adding Sodium Bicarbonate to help enzymes work better??  I told the boys' CF doc that there is no enzyme like pancrecarb and that I knew for sure that it was the sodium bicarbonate coating.  The doc said that he heard about some docs trying the sodium...

I have never attempted to deduct electricity...but now that we live in Hawaii and it is ridiculously expensive...I figure I may as well try to get a little back... What can I deduct??? This is what we use... Air purifier, all night Nebulizer Compressor Vest Pressure cooker to boil nebs Germ...

Here is Ethan's commercial...maybe I should put him in acting classes?? <a target=_blank class=ftalternatingbarlinklarge href="http://chasing-truth.blogspot.com/2010/12/ethans-new-toy-acapella.html ">http://chasing-truth.blogspot....new-toy-acapella.html </a> Would love some hints on how to use...

Okay, so we live in Hawaii (I know boo hoo us <img src="i/expressions/face-icon-small-smile.gif" border="0"> Electricity is absolutely a ridiculous price and I believe that boiling our nebs on the stove top is making our electricity be extraordinarily expensive. I am thinking if I try a...

Hello all, I know you are probably thinking why not ask your doctor. Oh Lord do I wish it was that easy <img src="i/expressions/face-icon-small-smile.gif" border="0"> We are not at a clinic and our pulmonologist is a kook!!!! I can contact our old clinic, but figured you guys might have a...

I don't know what is going on with my 6 year old. He obviously has texture issues and only eats really soft items easily (applesauce, avocados, cheese, pasta) When he eats anything with texture, his gag reflex takes over sometimes and he pukes. It takes him like 2 minutes to chew just a...

Hi all, If you all know of some good articles about Omega 3, please send them my way!!!! I would love to add them to my blog <a target=_blank class=ftalternatingbarlinklarge href="http://chasing-truth.blogspot.com/2010/07/benefits-of-omega-3-fatty-acids-are.html...

Have your younger kids tried them...I am assuming they wouldn't work for my almost 3 year old, but maybe for my 6 year old. How are they different from the vest??? Have you seen positive results for the younger kids???? blessings, missa

Everyone keeps saying that the temperature it takes to kill pseudomonas and other such bacterias is 158 degrees. I can't find any credible site that says that. I want to blog on "sanitizing" nebs and want to have a good page to send people to. I know the CF site says it, but I am greedy and...

This my momma is all on her own and seems like no one is really taking this little boys case seriously. I have no experience with constipation, so please if you can help with any suggestions that would be so appreciative. This is what she wrote to me, as to what is going on. blessings, missa...

I want to show what we have to add to our life with 2 kids with CF i.e. keeping toothbrushes separate....different toothpaste...no sharing drinks/food. I want to make sure I give as much info as I can in my post. So please let me know how you see life different with 2 kiddos with CF...

Basically we were told that here in Hawaii,in order to qualify for assistance, we have to terminate the boys coverage under my husband. This is how I understand the insurance system...please clarify if you can...maybe with websites if you have them??? When we get to the point of being able to...

I am trying to cut out as much sugar and dairy as possible, which makes finding high calorie snacks hard...especially with Ethan Sky His 2 new favorites.... I make a pizza crust without any toppings (kind of like foccacia bread, I guess) and he dips it in butter/olive oil with a lot of salt...

Okay, so we just moved states, changed jobs and thus changed insurance. The boys are on Pancrecarb right now, and the co-pay for just those enzymes is $500 a month. I know that there are many out there that are dealing with this issue!!! Please, tell me if you know of any enzymes that are...

We could be moving to the big island.... anybody have any experience there??? Financial-wise and CF center-wise??? blessings, missa