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Hello everyone, I was wondering if anyone is on disability either SSI or SSDI and is working part-time. Can you explain the process to me? I am confused and calling SSA made me even more confused. I really want to work part time but I am afraid they will take away my benefits from me or decide...

Did anyone receive the tainted vials of recalled Amikacin from Tevo Pharmaceuticals this past year? I was one of the lucky ones who received every lot recalled and suffered complications from it. I was curious if anyone else did and if so what type of complications have you had. Second...

I was hoping someone on here could give me some information about the Adult CF Center in Knoxville. I am moving next month and need to get acquainted with a new center. Any information would be great. Thanks

I wanted to know if any of my fellow CF'ers were aware of the FDA recall for IV Amikacin solution 2ml and 1 gram vials????? Recall due to potential glass particulate matter. If so did anyone exhibit any of the listed symptoms???? To get a full description of recall and the lots affected go to...

Just curious if anyone else has dated or is dating another person with CF?

Not sure if anyone has heard about this or not but I have been getting a lot of information about this company in Bonita Springs Florida that is doing adult stem cell treatments. They actually have a section about Cystic Fibrosis along with other aliments. If you want to look into it they have...

So I have been dealing with this crap for over 3 years now. On meds off meds, oral then IV. Just finished an 8 week Stent of IV meds. I was feeling pretty good but now I'm starting to feel fatigue again and coughing alot. My PFT's tend to drop when the Myco is active. My body has become...

Let me start by saying that I am truly blessed to have found such a wonderful man that accepts me and my CF (NEB) and all the other craziness that comes with it. However sometimes I just dont think he understands how it works. I have included my hubby in all of my medical care including doctors...

For all of my fellow CF'ers who know how embarrassing our stomach smells can be.......I wanted to share a possible solution to the problem. My mother found a product to "mask/cover-up" the wonderful scent of a CF belly LOL Its called Poo-Pouri. She found it on www.HSN.com. I was extremely...

Im just curious if anyone got pregnant while on disability or awaiting approval? I am considering trying again while I am still some what healthy. I am awaiting a decision from disability. Im just not sure if they would appreciate the pregnancy lol The fortunate thing is since Ive been out of...

Im just curious what medications/antibiotics I need to stop while pregnant....anyone know? I take Cayston, Pulmozyme, Hyper, Xopenex {All neb} Avelox & Biaxin for Mycobacterium, and Zenpep. Thanks

I am soooooo pissed off right now, my blood is boiling. I filed for SSDI about a month ago and received my denial letter in the mail today. I am so frustrated with the government and how they conduct their so called reviews. Ive had no say in any part of the process, no one every called and...