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  1. R

    Missing you

    Dear son, I miss you sooooo much! Michael you have been gone just over a week and my heart does not want to except that you are gone . You were the best son ever and way to young To go sweet heart! G
  2. R

    Starting the evaluation for transplant

    My son is 22 years old and is getting sick every time he comes off IV meds the dr.s are telling us to get prepared to start the evaluation process. Iam watching my son get sicker and thinner aLl the time And as soon as he comes off the ivs his gets sick again to watch him get disappointed is...
  3. R

    portable nebulizer machines

    I want to purchase a portable nebulizer machine does any one have any recommendations my son uses peri nebs and does 2 nebs 3x a day and caston every other month the portable nebulizer machine I found look like they are one use only before cleaning and can any one tell me is there a real...
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