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  1. M

    Going into hospital

    Real slippers! The last time I was in I was kicking myself because I forgot my slippers. I hate those stupid sock ones they give you because you have to touch them to get them on and off and I hate to think what germs are on hospital floors. I just be sure to bleach them in the washer or lysol...
  2. M

    In PAIN, hospital NOT helping

    Oh my gosh, Kelli! I'm so sorry for you and all they're putting you through. Where is the CF center that you go to? As for an X-ray ruling out a collapse, that's actually not true. I've been having lung pain for a couple weeks and had a chest X-ray which showed nothing. So my doctor decided to...
  3. M

    SSDI...Renewal? Volunteering? Vacationing?

    Volunteering? Vacationing? Hi Everyone, My question is regarding volunteering/vacationing and disability. Now that I don't work, I spend every minute of everyday in my home doing treatments/therapies and trying to maintain my health. This has proven helpful for maintaining my health so I don't...
  4. M

    Anchorage, Alaska CF Clinic...Opinion?

    Hi everyone. I just had my first visit at the CF Center here in Anchorage, Alaska. Does anyone care to share their experiences with it and/or the doctor(s) associated with it? Also, does anyone who goes there also receive care at ANMC (Alaska Native Medical Center)? Thanks for any responses!
  5. M

    appeal

    I'm curious...I'm assuming your doctor couldn't treat you or see you in that particular hospital because he wasn't affiliated with it. That's normal. However, you stated your doctor "wouldn't treat me at the other hospital." Did he refuse to participate in your care altogether (by communicating...
  6. M

    Cayston Finger Slicing Club

    Haha...Glad (sort of) to see I'm not the only one in the club! Shelly43: FINGERNAIL CLIPPERS! <img src="i/expressions/face-icon-small-smile.gif" border="0"> For those times when the little metal tab breaks off and the vial still isn't quite opened I keep a pair of (clean-brand new) fingernail...
  7. M

    Cayston Finger Slicing Club

    I just wanted to give a shout out to all the others out there that slice their fingers opening Cayston vials. How many times a have you done it? I just did my 4th centimeter long gash in a year. I think I'm going to keep a running tally! Score:Cayston 4 Thumb 0 <img...
  8. M

    New Cayston Uses and Existing users possible delays and shortage! Read here!

    FYI new cayston users So I have been on Cayston for a year now and due to various circumstances (and a pain in my butt insurance company) I might have to submit a NEW prescription for Cayston to a NEW pharmacy. Will I be viewed as a new user of Cayston and be in the situation where I don't get...
  9. M

    Medicare denial for Cayston

    Hi everyone. I see this thread is from 2010 and I'm just curious if Cayston was ever added to the Medicare formulary now almost 2 years later? Is there anyone out there that is solely on Medicare who gets Cayston (and has it covered by Medicare)?
  10. M

    Question for those who are knowledgable with working and ssdi !

    So Julie in the information for the link you posted it states: After your trial work period, you have 36 months during which you can work and still receive benefits for any month your earnings are not "substantial." So just for curiosity's sake I have a question. What happens after the 36...
  11. M

    Are you pregnant?

    No, but my husband and I are wanting to start a family so I'm curious to hear from anyone who is, too.
  12. M

    SSDI and Withdrawing Retirement Early

    Hi everyone. This is a follow-up question about the post I created about what to do with retirement funds, but I wanted to focus on the second part of my question and see if I can get anymore information. I'd like to get as much information as I can before I do anything that might affect me...
  13. M

    Retirement Money?

    Hi everyone. I'm no longer working and, therefore, no longer contributing to my state retirement (teacher) fund. For those of you who had some sort of retirement fund that you were contributing to while you were employed and then stopped working, what did you do with the funds that were...
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