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International Conference on Pediatric Chronic Diseases, Disability &Human Development International Conference on Pediatric Chronic Diseases, Disability and Human Development will be held in Jerusalem on 20-23 January, 2015. I just wanted to share this with anyone who might be interested in...

International Conference on Pediatric Chronic Diseases, Disability &Human Development International Conference on Pediatric Chronic Diseases, Disability and Human Development will be held in Jerusalem on 20-23 January, 2015. I just wanted to share this with anyone who might be interested in...

Hi! I am actually posting this to help someone else. He is trying to sue whomever for medical negligence and asked me to ask the group if someone did a full genetic sequencing in 2005 or before. He just needs the results with the date - the name can be blackened out/erased. This can be done...

Hi! I am actually posting this to help someone else. He is trying to sue whomever for medical negligence and asked me to ask the group if someone did a full genetic sequencing in 2005 or before. He just needs the results with the date - the name can be blackened out/erased. This can be done...

Has anyone heard of this or know anything about it? Salin Plus http://www.youtube.com/watch?v=ly-i1sZskX8 Thanks! :D

:confused: I have had the weirdest experience this past week. My 4 yr old (no CF) had bronchitis in august and now another lung infection in january. I went to a pulmonologist [(the same one who ultimately sent my big daughter to do the sweat test, and, as the saying goes, "the rest is...

Hi :confused: I just wanted to know if CF ers are still treated at CF clinics after they have undergone a transplant? Are they still seen by a multidisciplinary team? What is life after transplant like? Thanks!

If anyone likes reading this stuff.... http://www.thelancet.com/journals/lanres/article/PIIS2213-2600(13)70005-5/fulltext

(car) I arrived at our clinic at 9 am and left at 2 pm. This is actually pretty unusual, but I want to know how your clinic works. Here, no one has an appt. and people show up when they show up. Usually, between 9-10 more or less. So, it is basically chaos. There is a waiting room and a play...

I need new nebs for my eflow and don't know how to order them. Do I have to call the CFF directly? Mail my prescription? Thanks for you direction!:D

Hi! I am trying to decide what to buy to help augment our CPT. Any tips or advice is greatly appreciated. I saw the G5 Flimm-Fighter Percussor and the G5 Vibracare Percussor and I know there are other companies, etc. What do you all recommend? The vest is just way beyond my budget, but I'd...

Hi! I mentioned to our CF doctor that my son is hoping to run in a marathon and he said it isn't healthy. It is harmful to the joints, there are many injuries and how the body metabolizes glucose, etc after a certain amount of time changes... I am very surprised. I thought it is healthy...

I found this site and tried downloading their link for a PC version of their game. It doesn't work. So, I am wondering if anyone has or could try using their iPhone, IPad version and maybe let me know if it is good. If it is, then I would invest in the appropriate device. Thanks so much!<img...

Hi! I am trying to understand why my daughter had such a high sweat test result of 71 and why carriers (or how carriers) are effected. She has 3 siblings with CF - W1282X, and 3649+10kb C>T which is the only reason she was tested. She is perfectly healthy. This result was a shock, the other...

Hi My newly diagnosed 20 yr. old started taking antibiotics/anti inflammatory meds and inhalation of hypertonic saline. He says it is making him weak and he wants to stop. The doctor says he isn't taking anything that should make him tired. His is VERY active and his FEV1 was 126. The clinic...

Hi! I am a mom to 2 newly diagnosed kids (ages 15 & 8) with CF (W1282X/<span>3849+10kbC>T). <span> I am trying to decide which nebulizing system to buy and I am feeling quite overwhelmed by everything. <img title="Surprised"...