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Well she woke up Sunday with a fever 103.5 so we went to the ER. She has the flu and she was already getting ill with low grade fevers and a cough and her CF appointment was going to be today... She had a PORT placed yesterday. She keeps having severe fevers and is exhausted. Will most likely...

When do you decide to get a port? What is the deciding factor? This is her 3 rd hospital stay in 9 months. What are the pros & cons of a port for a cf-fer?

Well we are back in for her 3 rd hospital stay in 9 months we have been here since Dec 13th. This has not been a good year for her. This go around we stayed closer to home since it was Christmas and we wanted to see if they are able to care for a CF patient because we have heard from our clinic...

What signs do you all see as declines in your childs health to know if its just a normal bug or virus to know if its the start of permanent damage or decline? This year has been so rough on her, she is 10 and had been doing really good for so long and last year she started to get on antibiotics...

When did you all develop CFRD? Our Whitney has been having difficulties with her sugar the past 2 years and they said that she was pre-diabetic. We seen the Endo doc about 7-8 months ago and her A1C was 5.9 so we thought great she is fine for now but now she is at 7. This is her second tune...

Anyone out there with these two together? Our 10 yr old has both of these and wondered if there is any studies on this or recommendations & if we should do her cpt treatments different.

Anyone using these nebs for their kiddos? Can you put them into a baby bottle sterilizer?

Just wondering what is considered disease progression. This past year she has had to go to doing four vest treatments daily due to congestion and she was in the hospital last March and now again but this time she is severely congested and she had a endoscopy done and they expressed about how...

Our 10 yr old CF dd508 back in since her last one in March. She lost over 5 lbs and coughing & has been on several rounds of antibiotics but still not well. Today is the second day & This morning work up with a 103 temp, they stopped the antibiotics so they can do a bronch in the morning. They...

Anyone else have lung function loss without any major sign of illness? Our 9 yr old had her check up yesterday and she has been really well for a while now meaning like 2 years since a tune up and she dropped to 80 on her lung function test and the only symptoms she has is a mild temp like 99...

Anyone else have lung function loss without any major sign of illness? Our 9 yr old had her check up yesterday and she has been really well for a while now meaning like 2 years since a tune up and she dropped to 80 on her lung function test and the only symptoms she has is a mild temp like 99...